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Endometrial stromal sarcoma (ESS): What treatment did you get?

Gynecologic Cancers | Last Active: Sep 10 9:55pm | Replies (68)
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@gidget6

Hi, I also have ESS which is treated with hormone blocker. Have you received any direction or nutrition mainly as to what foods to avoid, if any?
This seems such a rare cancer, and I have not seen much information on it.
Thank you

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Replies to "Hi, I also have ESS which is treated with hormone blocker. Have you received any direction..."
jspr422 | @jspr422 | Nov 27, 2023

Hello @gidget6 --

So sorry to hear about your diagnosis. I agree, it is frustrating to not be able to find much information about ESS. The only nutritional advice my doctor provided was to eat healthy, whole foods (with an occasional "treat"). Have you heard other advice?

You are in my thoughts and prayers.

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nzq21p | @nzq21p | Aug 4 1:56pm

Hi.. you haven't had any hysterectomy or chemo/radiation? What is hormones blocker treatment?

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leahinaustin | @leahinaustin | Sep 7 12:47pm

So sorry your wife and you are dealing with this. I was diagnosed with ESS stage 4b in 2018. I had the radical surgery and then started hormone AI. Lots of side effects for me. Bone and joint pain, nausea, extreme fatigue and more. The best advice I can give is for her to do the research on nutrition and decide what lifestyle changes she can make. The lifestyle changes in sleep, diet and exercise really do make it easier to deal with this. Also, as someone who has a very supportive and loving husband, knowing that you are not in this alone is huge. Good luck and sending you positive energy.

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