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Betty (@bettygsa)

JAK2 V617F positive, now what?

Blood Cancers & Disorders | Last Active: Dec 18, 2023 | Replies (9)

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Have recently been diagnosed with JAK2 V617F. I would like to know about it.

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Replies to "Have recently been diagnosed with JAK2 V617F. I would like to know about it."

Welcome to Connect @jv4430. There are a number bone marrow disorders related to the JAK2 gene mutation called Myeloproliferative neoplasms. These are a type of blood cancer that occur when blood stem cells produce too many of one or more types of blood cells, including red or white blood cells, and platelets
Until I know which particular condition you have, I’m posting a link to a good over all article that explains myeloproliferative neoplasms MPNs, the JAK2 V617F mutations and changes that can take place in the bone marrow with blood cell development.

From Verywellhealth.com:

We have several members in the forum who also have this acquired mutation and have developed Polycythemia Vera (PV), Essential Thrombocythemia (ET) or Primary myelofibrosis. It is possible to have one or more of these conditions concurrently.

There are also quite a few discussions where other members discuss their experiences with your similar acquired mutations. One in particular that might be helpful for you is this one:
JAK2 V617F positive, now what?
With members @bettygsa @preacherswife1977 @ger63 @

But don’t stop there. Simply type in JAK2 V617F in the upper search bar and several pages will pop up for you to pick and choose.

I’d really like to put you in touch with other members with your same diagnosis. If you don’t mind sharing, what is the name of your condition? PV, ET, PMF?