Any side effects after going off prednisone slowly?

Posted by lindaadel @lindaadel, Nov 11, 2023

After being on prednisone for seven months starting at 10 mg and going down every three weeks I have taken my last prednisone pill today that was 1 mg. Should I expect any withdrawal side effects etc.?

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@pb50

You are so correct that we are all different. I’m 73, 12 years into RA, on a biologic infusion every 6 weeks of Remicade. Because of an experience with steroids years ago for ruptured disc, I have not taken any in decades.

When I started my regiment course of 20mg prednisone. I felt like superwoman. All pain gone, high energy, euphoric mood. It was flipping awesome. What a shame I can’t just live my life on that drug. But four days later I began to step it down and my energy and euphoria stepped down too. Que Sera I suppose.

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Hi Pam. LOL. Thanks for slipping in some humor about feeling like superwoman. A little laughter now and then is good medicine. I remember my first few days on 20mg. It started off great. I could lift my arms and pain was gone in 5hrs. About a week on 20mg I went from superman to exacerbation of hx of anxiety disorder. Doc put me down to 15mg. Didn't work. Put me right back on 20mg. was there for a month and a half. Then weaning after that went relatively smooth. What a ride. After a while, I think to some extent we all get to know how our body is going to handle the Prednisone along with the nasty detox effects. I'm 71 and realize most of us have had to make lifestyle changes. Had to downsize my woodcraft/ craft show activities. Too physically strenuous. One thing I found out with the prednisone is that it's masking any and all pain associated with my L-4 L-5 lower back injury. Not a peep since I've been on Prednisone. Big warning for me when I put the superman cape on. Wish you the best.

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@lindaadel

How are you feeling without any prednisone at all? I have been off my 1 mg of prednisone for a week and a lot of my pain is coming back! I am not as bad as I was before I started prednisone which was really really really horrible!!! again I am taking one day at a time doing the best I can do. My very best wishes to you!!!

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I am doing well. I have limited, random soreness here and there, rt upper arm, left wrist etc, but it does not seem to last very long and does not interfere with anything. I am now a bit of a hypochondriac in that I notice everything. I wish I knew if such random things occurred before. I think not and hopefully it will dissipate over time. But I am full on preparing for Thanksgiving dinner at my house and delighted I can with no physical limitations. Off 1 week now. Happy Thanksgiving to all.

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@freeme

I am doing well. I have limited, random soreness here and there, rt upper arm, left wrist etc, but it does not seem to last very long and does not interfere with anything. I am now a bit of a hypochondriac in that I notice everything. I wish I knew if such random things occurred before. I think not and hopefully it will dissipate over time. But I am full on preparing for Thanksgiving dinner at my house and delighted I can with no physical limitations. Off 1 week now. Happy Thanksgiving to all.

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Hi I am so so happy that you are doing well !!! Happy Thanksgiving to you and your family and everyone else!!! my very best wishes!!! I am taking one day at a time.

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@lungranger77

Hi Pam. LOL. Thanks for slipping in some humor about feeling like superwoman. A little laughter now and then is good medicine. I remember my first few days on 20mg. It started off great. I could lift my arms and pain was gone in 5hrs. About a week on 20mg I went from superman to exacerbation of hx of anxiety disorder. Doc put me down to 15mg. Didn't work. Put me right back on 20mg. was there for a month and a half. Then weaning after that went relatively smooth. What a ride. After a while, I think to some extent we all get to know how our body is going to handle the Prednisone along with the nasty detox effects. I'm 71 and realize most of us have had to make lifestyle changes. Had to downsize my woodcraft/ craft show activities. Too physically strenuous. One thing I found out with the prednisone is that it's masking any and all pain associated with my L-4 L-5 lower back injury. Not a peep since I've been on Prednisone. Big warning for me when I put the superman cape on. Wish you the best.

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Steroids scare me. Years and years ago while on them for ruptured disc I had a day of insanity -
Laughing inappropriately then bawling while watching a comedy - crazy stuff. I haven’t taken them for anything since until this.

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@lindaadel

After being on prednisone for seven months starting at 10 mg ending up at 1 mg. After stopping completely I did not realize that some people have with drawl situations. For me I was not great on prednisone to start with I was very sensitive to it! After being off for a little over a week at times I feel lightheaded the same way I felt when I was taking higher doses of prednisone. do any of you have any withdrawal symptoms after you went off your prednisone completely?

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I don't remember any symptoms after tapering for 16 months. My CRP and Sedrate were normal.

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