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Essential Thrombocythemia: Looking for information and support

Blood Cancers & Disorders | Last Active: 6 hours ago | Replies (480)
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@colleenyoung

Hi @sugarbeez (love your username), you might be interested in this discussion related to your question about nutrition plan and ET.
- Essential Thrombocythemia (ET): foods, diet, nutrition?
https://connect.mayoclinic.org/discussion/essential-thrombocythemia-et-foods-diet-nutrition/

Have you thought of requesting an appointment with a dietitician specializing in hematological disorders?

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Replies to "Hi @sugarbeez (love your username), you might be interested in this discussion related to your question..."
nohrt4me | @nohrt4me | Nov 23, 2023

Thanks, Colleen! I wish every ET patient got a dietary and physical therapy consult! Diet and exercise play a big role in reducing overall clot risk. And some changes in diet and exercise can help with fatigue. I have had ET-CALR for 15 years, on HU for 5, and no clots so far.

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taisaint | @taisaint | Nov 29, 2023

I am interested in consulting with a dietitian specializing in hematological disorders. Where did you find a dietitian with this specialty?

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