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@exhcmposttx

Thanks for the encouragement @danab. So many similarities in your story. I just started Envarsus which is a time-released form of tacrolimus. I've already noticed that my tremors are better. I'm a musician and I could actually manage to play guitar for a few hours yesterday. I hope it stays that way because that was a big deal for me. I was getting kinda depressed thinking I would have to give that part of my life up. It's funny you mentioned the taste of food. I've had an issue with that since being released from the ICU. I don't know if it's the prednisone or tacro but it makes me feel better to hear that it goes away. Everything has a taste like an artificial sweetener has been added. It's good to hear the straight story from someone who has already been through what I'm facing. There have been a few setbacks but it does feel like things get a little better everyday. No rejection and all of my numbers have been excellent. I had the advantage that I was healthy enough to wait in the hospital for the right heart and I got a good one. I'm very thankful for that.

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Replies to "Thanks for the encouragement @danab. So many similarities in your story. I just started Envarsus which..."

That's great and I believe it was the predasone for the tremors. I can understand the musician part. Not musicicalty.inclined but tremors would be a problem. Yes you are correct on the food, great analogy as I too don't like artificial sweetener. I found it interesting that meats and salads were the worst. Which of course are my favorite foods.