Replies to Hi. I was diagnosed in January. Very scary. My mother has mm. They say it's not…

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Blood Cancers & Disorders | Last Active: 1 day ago | Replies (862)

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@tatajess

Hi. I was diagnosed in January. Very scary. My mother has mm. They say it's not hereditary. I'm in pain. Bone pain. Just did an mri. Waiting on results. They don't look good. I'm. Hoping it hasn't progressed to mm. Anyone else on here. Have pain

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Replies to "Hi. I was diagnosed in January. Very scary. My mother has mm. They say it's not..."

Patty, Volunteer Mentor | @pmm | Nov 25, 2023

@tatajess
Greetings from Arkansas. I am glad to hear that your MRI results were “unremarkable” as they seem inclined to say.
It’s a lot to process, all the dots and likely causes and confusing information sometimes as they say they may, or may not be connected.
It was a relief to me that what they thought might be a lesion on my C2 vertebrae was attributable to arthritis upon further evaluation. Three years out from diagnosis and my MGUS just seems to be lurking. Sneaky ingrate that it is. One would think as it’s host, I would be afforded a bit more consideration.
I have neuropathy in my feet and associated bone pain. Where is your bone pain? I suppose my age is also a consideration as I will turn 72 in May.
I’m glad you don’t have bone lesions, but nag your doctor to get to the source of your bone pain. I hope you have found someone who has extensive experience treating Multiple myeloma. MGUS is not cancer, but you want to be sure that your physician is well trained, experienced, not dismissive of your questions and concerns and takes your MGUS seriously.
Let us know how you are and what you find out. Great people here who are quite helpful.
Patty

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