← Return to Fibromyalgia pain: Let's connect

Discussion

Fibromyalgia pain: Let's connect

Fibromyalgia | Last Active: May 9 4:21pm | Replies (1332)

Comment receiving replies
@darby413

When I was at Mayo, the doctor said even though I showed the signs and symptoms of fibro, he diagnosed me with myofascial pain syndrome. Since then my doctor locally is treating me for fibro. (I also have RA) Since all this is new to me, I have lots of questions...Do you have a lot of fatigue? Do you have more pain in one or two areas most of the time besides generalized pain? What do you take for your fibro? Thanks

Jump to this post


Replies to "When I was at Mayo, the doctor said even though I showed the signs and symptoms..."

With FM I have had constant pain for 49 years, getting worse each years. It is all over my body, right now seems to concentrate on my legs from feet to waist. I also have a torn rotator cuff that cannot be fixed and osteo arthritis, My spine discs 3 to6 also are deteriorating. I have constant fatigue and was told that never to expend energy longer than you can rest after each chore. Even taking a shower counts as having to rest for that length of time. I am allergic to fibro medications and can only take 4 T3's a day so the pain level is always there. Best of luck to you.

Have had fibromyalgia for what seems forever, and I am presently 75 yrs old (although there are days that I feel decades older). I have lots of other health issues which also bring pain along with the factors, so there are days that it's a bit like blurred lines making it impossible to distinguish if it's he fibromyalgia or a cocktail combo of the other health factors. Nonetheless, pain is pain and I am very grateful for the days that I don't wake up hurting a lot. Generally, once I'm up, have had my hot café con leche, and have been moving for a while, the pain(s) ameliorate. As the day wears on, I may have to lie down for a short time b/c I literally feel like I'm a balloon with the air escaping, and I HAVE to get off my feet, lie down and feel waves of pain from toes to cranium, with not-quite-deep and non-restorative "nap". Hard to get up, but do so since I don't have anyone to make meals, etc. When pain is nasty, I do take an Aleve or two (the only med that I can take since ALL prescription meds and OTC items are a no-go). A hot shower helps tremendously! I don't give in and just do nothing all day, unless I am really ill and pain level is 8 to 9 out of 10. Rheumatologist who diagnosed the fibromyalgia over 30 yrs ago prescribed cyclobenzeprine 10 mgs and I continue taking it at night. Even with this muscle relaxant, I can and do still experience fibromyalgia pain separate from other pain issues. You learn to "know" your body and what it's telling you. As I said, I have several serious issues such as polymyalgic rheumatica as well as osteoarthritis and neuralgic pain issues. It is what it is, and I try to make the best of each day that is a "good day." I had been on amitryptline also but had to drop it (via a "weaning schedule" though, not cold turkey). Ami has been mentioned by some members on this site for fibromyalgia pain, as it seems to help them without adverse effects. Talk to your doctor about the possibility of at least the cyclobenzeprine. I absolutely refused Lyrica and Cymbalta since they do have side effects and I am highly sensitive to drugs such as those (any and ALL antidepressants).
The brain fog and confusion are sometimes tough to deal with. I truly do forget just what day of the week it is, no matter what I do to jog the memory. My iPhone and iWatch help with that! Appetite is oftentimes affected, and so are tastebuds. So many issues to learn to cope with! Just don't beat yourself down. Be kind to yourself. Find joy in each day. And best of luck in dealing with your difficult journey.