Chronic Pain members - Welcome, please introduce yourself

Hello @pamelars60 -- welcome to Connect. Thank you for posting and sharing here on Mayo Connect. It's a great place to ask questions and learn what others with similar health problems are doing for treatments. There is a Mast Cell Activation discussion here on Connect that you find helpful to read through: Here is a link to the discussion:

-- https://connect.mayoclinic.org/discussion/mast-cell-activation/bookmark/?ajax_hook=action&_wpnonce=008121fd0c

Here is some detailed information on Mast Cell Activation Disorder: http://bit.ly/2jkDjWH; and if you would like to read about Mayo Clinic’s approach, please click on this link: http://mayocl.in/2jtjyyB

In the meantime, I would like to introduce you to @kanaazpereira, @dolan, @mjgarr, @denisefeddersen, @mepslissy, @jools, who have all talked about MCAs and/or mastocytosis, and I hope they will return with some advice.

Since MCAS is often found in patients with Ehlers–Danlos syndrome (EDS) and postural orthostatic tachycardia syndrome (POTS), I wonder if one of our mentors, @kariulrich would have any insight?

John

Hi I am daddylonglegs. I have CRPS and have had it for 21 years now and i am 61 yrs old. It started after a forklift crush injury to my left ankle and over time has spread to my hip. I look forward to seeing how others cope with their chronic pain. And to share some of the tactics i use which ones work and which ones dont

Hi @daddylonglegs! Welcome to Connect and I am certain that after 21 years you will have some very valuable info to share with all of us. Hopefully we will do the same. My pain is caused by chronic pancreatitis and scar tissue from having part of it removed 4 years ago. and I almost never get full pain relief and that is not even my intention after this much time. If narcotics, meditation, prayer, and minimal exercise can keep me below 4-5 on the pain scale, I am OK. Not great, but it is my normal, I think. Again, welcome

Hi victorious69 here. My subject is shoulder tendonitis. Where did I start? Hubby of 79

@colleenyoung

Chronic pain is so discouraging when there seems no hope in sight. Really been in a lot of pain and nothing to do except feel it. Definitely not fun for any of us. This thing once called life has lost its glimmer.

I feel like this at times but we just have to keep on,keeping on don't we

Parus (@parus), your drawings are beautiful and I wish that you could use drawing to ease the pain. When you are in pain I know it's hard to think of anything else. Don't lose the glimmer in your art! One day at a time - hoping for a pain free day for you and others.
John

Yes Parus I love your art work can you just immerse yourself in your art?

I chronic back and leg pain. Could Gabapentin or Tramadol cause diarrhea? I also have pain on my "tailbone" when I sit.

Hello
I have Chronic pain, after fusions to my lower back and Clavicle. After past surgeries on several medications and a pain stimulation inplant (this helps dealing with pain it doesn’t make it go away!
I recently tried Yog, made it even worse!
Stretching daily, not walking long distance !
Waiting for my disability to come through so I can go to another specialist out of my current location..