← Return to Essential Thrombocythemia: Looking for information and support

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@blondie65

Hi my name is Pam. I was diagnosed in April 2023 from a routine blood test.
My platlets were in the 700’s I was referred to an oncologist who put me on 1 baby aspirin daily. He ordered blood work which came back positive for Jax2.
I seen him again in August my platlets were 920. He only wanted me to take 1 aspirin daily. I also was having neck surgery in October and he said I would be fine to go ahead with surgery. I had surgery on October 10th. Neck surgery C4-T1. The surgery went well. I spent two nights in the hospital. I went home on the 12th. On the 13th both arms were hurting bad. I went to ER and was admitted. They did an MRI and there was a blood clot pressing on my spinal cord. I had a second surgery on the 14th. I went home on the 16th. I’m doing really good now. On November 17th I went to see my oncologist. My platelets were 466. They ran my blood twice. It came out 466 both times. They asked me if I had been doing anything differently and the only thing is that I have a lot of people praying for me. I go back to see him in February. I will keep you all posted.

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Replies to "Hi my name is Pam. I was diagnosed in April 2023 from a routine blood test...."

Hi @blondie65. I remember your concern over having the surgery and if having elevated platelets would interfere with your surgery. It sounds like the surgery was successful except for developing the blood clot. I’m happy to hear that you’re doing well and can hopefully put that behind you.

But wow, what an interesting turn of events for you with having your platelets drop without treatment. I’m sure you have your oncologist scratching his head over this. It will be interesting to see what your next blood tests show. Hopefully the numbers stay stable for you. That would be a nice way to start the new year. ☺️ Let me know what you find out, ok?
Have a lovely Thanksgiving.