Hi @taisaint, You’re absolutely in the right section…no worries. ☺️. You have a great daughter who encouraged to you get a checkup with the symptoms you were experiencing. Why is it we mother’s tend to drag our heals when it comes to our own health?
You’re very active and otherwise healthy, so I’m sure this really came as a shock to find out you have a blood disorder. Believe me, it’s not caused by anything you did or didn’t do. I can relate because a similar thing happened to me out of the blue. I was super healthy and active too…then I wasn’t! Being special isn’t all that it’s cracked up to be, right? I’d rather it came with a tiara than pills! 😅

Thank you for sharing more information. With the biopsy your doctor was able to determine factors that influenced their decision for treatment. The acquired JAK2 gene mutation is the culprit in your diagnosis. To explain things clearer than I can, here’s a good source of information regarding the JAK2 Gene…

You’re wondering why you are not a candidate for a phlebotomy. That may still be a possibility to bring down the amount of red blood cells and hematocrit in your body if warranted. There are certain parameters for indicating this procedure and your doctor will have reasons for not doing this first. They may be waiting to see how the hydroxy impacts your blood counts.

Having faced a ‘special’ diagnosis myself, one thing that is important to remember; This doesn’t define you! Stay active, follow your same routines and keep a positive mindset.

Have a Happy Thanksgiving. Do you have a large family gathering?