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Does anyone with AFIB NOT take blood thinners?
Heart Rhythm Conditions | Last Active: Jan 23 9:08am | Replies (149)Comment receiving replies
@windyshores
How long have you had your borderline QT interval prolongation? Did it start with meds? Mine was at 499 on 600 mg Kisqali, then dropped to 459 with 400 mg Kisqali, but then started creeping up to 472. My oncologist told me 480 is the threshold we have to stay underneath, but I've read 460. I recently asked him to do another EKG since it had been 18 months. He was reluctant because he said it's not standard protocol. Well, I think once you've had QT prolongation from Kisqali (rare side effect) that you should be tested occasionally. He pushed it off until I had my labs, but that was during my one week off Kisqali (3 on, 1 off) so I had been off of it for 4 days meaning the QTc could have gone back to normal if it had been elevated. Now I still wonder what the score is on the last day of my 3 weeks on.
What were you told the QTc threshold is? Is your doctor concerned about your scores? Which doctor is monitoring it?
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I was told 460. Not a single doc has raised this issue. I raised the issue myself it when prescribed Zofran. We have to protect ourselves.
I have COVID despite continued masking and was prescribed Paxlovid, which can prolong the QT interval but no doctor I could reach cared, and urgent care would not do an EKG. I developed an arrythmia the next day (Kardia says supraventricular ectopy but it read constantly, and ER said atrial fibrillation.) So I got my QTc score from the EKG and it was down to 450 (I have had 460's, 480's and one 504 but during afib. I actually found info that confirms that can raise the score).
ER doc and cardiologist said that COVID was causing the arrythmia but I stopped the Paxlovid on my own and heart stabilized. I reported it to MedWatch just now. I found an online FDA warning that the med can interfere with the heart's electrical system. But docs told me to continue with it!
I truly believe this was life-threatening. Again, we have to watch out for ourselves in this world. That's all I can say. I am hoping no damage was don to my heart. Yesterday I could not get out of bed because I had afib whenever I did! I am not on blood thinners and ER didn't mention that either. I am alone and felt so unsafe with no help despite contacts with MD's.