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JAK2 Mutation - Effects and Questions

Blood Cancers & Disorders | Last Active: Jun 19 5:59am | Replies (303)
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@marnix

Thanks for asking, Colleen. I am managing them okay... they are not really bad, usually last about a day or two.

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Replies to "Thanks for asking, Colleen. I am managing them okay... they are not really bad, usually last..."
nypara66 | @nypara66 | Nov 21, 2023

Hello, I was having sensitive gums and bad irritation when begining the hydroxyurea. I started off 7 days a week, then 5X and now 3 days a week for about four months and it’s keeping the platelets down around 400. My mouth is so much better. It took about 4-5 months for my body to adjust. I was recently diagnosed with PV in January.

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