I am sorry you are having to go through this, also. Just finished my chemo treatments and met with the radiation oncologist today to discuss the PET scan results. I will start 5 weeks of radiation treatments in a couple of weeks. I live in Missouri. Where are you located?

Hi there, (I shared this above but thought I would share with you as well) my mother, who is 61, was recently diagnosed with High Grade Endometrial Stromal Sarcoma officially after a full hysterectomy. Post surgery CT scans are “clear” but she is currently receiving radiation as the chance of recurrence is high (they said chemo wouldn’t do much and radiation is kind of questionable too) and it was found in I believe 2 lymph nodes that were also removed. Back in Sept 2023 she noticed just a small red dot on her labia which prompted her to go to her OB. All research articles I read on this include mostly those who have had it spread to the lungs and or other parts of the body. Trying to figure out prognosis…etc etc. Welcome to reach out if needed. Surprisingly my mother has worked hard at maintaining a positive outlook and is trying hard to stay in good spirits -L

Hi..what were your symptoms, treatment and prognosis..I am just told I have ESS-HG, I had 2 instances of minor spotting 2 months apart, I am 59, postmenopausal for 10yrs.. no other symptoms at all, healthy weight and no other health ailments like BP, diabetes or anything.. D&C done for a polyp removal revealed this diagnosis..totally shocked..