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pedals (@pedals)

How do you deal with monitoring a lung nodule and anxiety?

Lung Health | Last Active: Feb 13 4:18pm | Replies (37)

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@lls8000

@millard, Keep trying. There may be communication going on behind the scenes. The radiologist may not contact you (my experience is that they don't generally talk to patients, but different health systems may work differently). The radiologist may be communicating with your oncologist. I would continue to request more info from the oncologist's nurse, or whoever you can. And you're right to feel that this shouldn't be this hard.

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Replies to "@millard, Keep trying. There may be communication going on behind the scenes. The radiologist may not..."

Hi, after 3 emails from my doctor, she finally responded yesterday afternoon. She felt that her remarks from my pet scan should be enough.
those remarks were (quote)
(Looks stable and reassuring.)
I told her I needed to know if the nodules in my lungs were growing or getting smaller.
She finally said that they appeared smaller.
She wants me to have a pet scan every three months to stay on top of any changes.
I am asking every four to five months. She is definitely not in favor of my request. Am I wrong in trying not to have too many pet scans? I guess I will have to research this question further.
So far, I have had five pet scans in a year and a half.
I am living with MB cancer, going on one and a half years now.