Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

@ramakambhatla

Hardly I know, about ESI at a specific site for relief of pain, I am rather perplexed about using pain pump with 100-300 times the relief! Is this being done, at Mayo clinic? I have had an MRI, showing DDD with no information from the few spine surgeons, that I consulted, as to the procedure. Briefly,
a nerve block was mentioned. I am just trying to be happy with the routine
activities, that I am able to do. I would like to know as to how and who is
taking part in this procedure, like : Neurosurgeon, spine surgeon. Thanks for
a reply, in this reference.

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@wsh66

I wholeheartedly agree with you. A stigma seems to be building around the use of opioids. Not just the abuse, but the legitimate use of them. It's hard enough to live in a culture that stigmatizes depression, anxiety disorder, bipolar disorder and the numerous other mental health disorders. We really don't need to start being stigmatized for using pain medications. Many of us here have to deal with multiple diagnoses - chronic pain and depression being just one example - and have to juggle a mix of medications for any number of things.

I don't think I'm ready for a pump, but it sounds like a really good solution.

Jim

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@tbeckys

Hi, my name is Terry and I was diagnosed when I turned 38 although I think I’ve had it longer. I’m 66 now and had to give up a job I loved which was being a nurse! The pain is 24/7/365 with no good days in between. It has always been excruciating since I’ve had it! I’ve never had even 1 day of the pain letting up.... none!
I would be interested to know what people do for their pain. Currently I’m using a heating pad, electric blanket and ice packs along with compression gloves for my R.A.and creams to rub on. My husband even rigged our SUV so I can have my heating pad and blanket in the vehicle!
I have several different autoimmune diseases and Fibromyalgia is another along with Diabetes and Heart Disease. I’m just a mess or my body is for sure.
I will continue to read your texts and answer when I can!
Best of luck to all!

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Peach, be careful. The person who watches the posts got on my case. I asked her if she had RA or FM. She said no. I said until you can walk in our shoes, don't get in the way of what I can say. I stopped the Methotrexate yesterday. I am also refusing the infusion. If they cannot give me something to give my life back to me, I see no reason to take their drugs which will never cure me. It may take me sooner, which we all know, is not a bad thing. God is in charge and He knows our suffering. But none of us have suffered as bad as He did on the Cross. That is what keeps me going. I was told they referred me to a Pain Management, but I have heard nothing.

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@tbeckys

Hi, my name is Terry and I was diagnosed when I turned 38 although I think I’ve had it longer. I’m 66 now and had to give up a job I loved which was being a nurse! The pain is 24/7/365 with no good days in between. It has always been excruciating since I’ve had it! I’ve never had even 1 day of the pain letting up.... none!
I would be interested to know what people do for their pain. Currently I’m using a heating pad, electric blanket and ice packs along with compression gloves for my R.A.and creams to rub on. My husband even rigged our SUV so I can have my heating pad and blanket in the vehicle!
I have several different autoimmune diseases and Fibromyalgia is another along with Diabetes and Heart Disease. I’m just a mess or my body is for sure.
I will continue to read your texts and answer when I can!
Best of luck to all!

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The meds they had me on until I quit yesterday are poison. I have black circles under my eyes and I look like I am about ready to go. I don't want to look like that. I want to feel good again.

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@wsh66

There is one problem with HIPAA. There is not one red Cent in any government budget at any level from the federal to the city to enforce the HIPAA laws. This was exposed in a TV special several years ago. Any action you take is going to have to be in civil court at your expense or perhaps you can bring about the firing of the offending party by the organization that they work for. I personally, was appalled when I learned that this was the truth.

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The heads of our Country will never be turned down for pain meds

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@tbeckys

Hi, my name is Terry and I was diagnosed when I turned 38 although I think I’ve had it longer. I’m 66 now and had to give up a job I loved which was being a nurse! The pain is 24/7/365 with no good days in between. It has always been excruciating since I’ve had it! I’ve never had even 1 day of the pain letting up.... none!
I would be interested to know what people do for their pain. Currently I’m using a heating pad, electric blanket and ice packs along with compression gloves for my R.A.and creams to rub on. My husband even rigged our SUV so I can have my heating pad and blanket in the vehicle!
I have several different autoimmune diseases and Fibromyalgia is another along with Diabetes and Heart Disease. I’m just a mess or my body is for sure.
I will continue to read your texts and answer when I can!
Best of luck to all!

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Have you gone to a pain clinic yet?

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@tbeckys

Hi, my name is Terry and I was diagnosed when I turned 38 although I think I’ve had it longer. I’m 66 now and had to give up a job I loved which was being a nurse! The pain is 24/7/365 with no good days in between. It has always been excruciating since I’ve had it! I’ve never had even 1 day of the pain letting up.... none!
I would be interested to know what people do for their pain. Currently I’m using a heating pad, electric blanket and ice packs along with compression gloves for my R.A.and creams to rub on. My husband even rigged our SUV so I can have my heating pad and blanket in the vehicle!
I have several different autoimmune diseases and Fibromyalgia is another along with Diabetes and Heart Disease. I’m just a mess or my body is for sure.
I will continue to read your texts and answer when I can!
Best of luck to all!

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In the Upper Peninsula Saunas are a common thing. I miss them. Also, you discussed Light and I feel EXTREMELY
Positive about the Need for Supplemental
Sunlight Source All year,but especially during winter. It has been 7 years since I stopped Tanning regularly and I have Never felt WORSE! It was a slow & steady decline,from the fungus on my feet/ toenails, to my aching joints and the color of skin.the Artificial light in tanning beds
may not be totally healthy,but just as with medications, the right dose is Beneficial.

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@tbeckys

Hi, my name is Terry and I was diagnosed when I turned 38 although I think I’ve had it longer. I’m 66 now and had to give up a job I loved which was being a nurse! The pain is 24/7/365 with no good days in between. It has always been excruciating since I’ve had it! I’ve never had even 1 day of the pain letting up.... none!
I would be interested to know what people do for their pain. Currently I’m using a heating pad, electric blanket and ice packs along with compression gloves for my R.A.and creams to rub on. My husband even rigged our SUV so I can have my heating pad and blanket in the vehicle!
I have several different autoimmune diseases and Fibromyalgia is another along with Diabetes and Heart Disease. I’m just a mess or my body is for sure.
I will continue to read your texts and answer when I can!
Best of luck to all!

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You will feel good. By being proactive in trying the right help you will get some relief from pain. Call back the pain center if they haven’t called you. Don’t wait around for help to come, go get it. That’ll make you feel like you are doing something productive and mentally feel better. Good luck @marield65

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@tbeckys

Hi, my name is Terry and I was diagnosed when I turned 38 although I think I’ve had it longer. I’m 66 now and had to give up a job I loved which was being a nurse! The pain is 24/7/365 with no good days in between. It has always been excruciating since I’ve had it! I’ve never had even 1 day of the pain letting up.... none!
I would be interested to know what people do for their pain. Currently I’m using a heating pad, electric blanket and ice packs along with compression gloves for my R.A.and creams to rub on. My husband even rigged our SUV so I can have my heating pad and blanket in the vehicle!
I have several different autoimmune diseases and Fibromyalgia is another along with Diabetes and Heart Disease. I’m just a mess or my body is for sure.
I will continue to read your texts and answer when I can!
Best of luck to all!

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Be nice.

REPLY
@tbeckys

Hi, my name is Terry and I was diagnosed when I turned 38 although I think I’ve had it longer. I’m 66 now and had to give up a job I loved which was being a nurse! The pain is 24/7/365 with no good days in between. It has always been excruciating since I’ve had it! I’ve never had even 1 day of the pain letting up.... none!
I would be interested to know what people do for their pain. Currently I’m using a heating pad, electric blanket and ice packs along with compression gloves for my R.A.and creams to rub on. My husband even rigged our SUV so I can have my heating pad and blanket in the vehicle!
I have several different autoimmune diseases and Fibromyalgia is another along with Diabetes and Heart Disease. I’m just a mess or my body is for sure.
I will continue to read your texts and answer when I can!
Best of luck to all!

Jump to this post

Who is they? Yes, meds sometime we get reactions but no one is forcing you to take it. You have to keep trying them to find what works.

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wsh66.. Thanks for trying to clarify, about pain injections, pain pump. I may contact a neurosurgeon, who has seen
me earlier. I guess that I am not taking serious treatment procedures, due to my CAD (Heart Problem) on meds., that cause bleeding (even dental problems are left alone, being superficial, are asymptomatic).I am trying to stick to conservative measures, few simple, measures like yoga, meditation, PT, occasional pain relievers, more
topical use, seems to be preferred than pills. Chronic pain is something you get used to, if not severe.

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