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Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Autoimmune Diseases | Last Active: Sep 24 3:33pm | Replies (878)
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@luki52

Hi, This is Sue. I have had Fibro and RA for 41 years; many combinations of medicines and surgeries. Then came Sjogrens, Reynouds and Pseudogout. My constant companion is fatigue. Sometimes being nauseous tags along.
I try to pace myself and noticed that green tea calms my stomach. Anyone have any new ideas for fatigue and nausea?

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Replies to "Hi, This is Sue. I have had Fibro and RA for 41 years; many combinations of..."
Becky, Volunteer Mentor | @becsbuddy | Nov 20, 2023

@luki 52. Just the fibro and RA are enough and now you have the others, too! Wow. You obviously aren’t a ‘spoonie’, yet. Members in this discussion group talk about managing their time and hints for dealing with fatigue.
https://connect.mayoclinic.org/discussion/how-do-you-plan-your-day-and-conserve-energy-are-you-a-spoonie/
I hope you will find some helpful tips!
Any special tips for how you’ve coped for so long?

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pb50 | @pb50 | Nov 20, 2023

I’m Pam… think I introduced myself but I’m RA since 2012, sero positive now but didn’t start that way. I had an atypical acute onset. One day I was fine - 3 days later I couldn’t open a bottle of water or a door, use my hair dryer, write, walk, sleep, etc. The insurance company was trying to force me into a step up drug program which was having no effect. Long story but my boss used his muscle to get me into see an ace rheumatologist. I walked out of my initial visit on Humira and had dramatic response in days. I’ve been through Enbrel as well and now am on an anti TNF, Remicade.

You mentioned pseudogout.. I never heard the term, but I reported to my first Rheumatologist that I had gout a couple of years before my RA diagnosis. She thought it was more likely my first RA presentation.

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