← Return to Essential Thrombocythemia: Looking for information and support

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@taisaint

I am interested in resources for ET. I am newly diagnosed with ET and PV. All info is appreciated.

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Replies to "I am interested in resources for ET. I am newly diagnosed with ET and PV. All..."

Good morning, @taisaint. Welcome you to Mayo Connect. You’ve recently been diagnosed Essential thrombocythemia and Polycythemia vera.
Both of these are blood conditions where your bone marrow is producing too many of a specific blood cell. In the case of ET there are too many platelets which can cause clotting issues. With PV there are too many red blood cells which can also have its share of problems.

I’m posting links to a few articles below to get you started on information. The articles are from Healthline.com. They are well written and give a good overview of ET and PV without overloading you with more than necessary at this point.
https://www.healthline.com/health/primary-thrombocythemia
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https://www.healthline.com/health/polycythemia-vera
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Both conditions of PV and ET may be indications that your bone marrow, which is the central blood manufacturing site of body, is compromised and not able to produce healthy blood cells. Both are symptoms of what is called Myeloproliferative neoplasms MPN. There can be changes taking place in the bone marrow which can alter the normal DNA division to allow for uncontrolled cell division.
Here’s more on this disorder and how it relates to PV and ET.
https://www.healthline.com/health/cancer/myeloproliferative-disorders
Do you mind sharing a bit more about how you were diagnosed? Have you had a bone marrow biopsy or blood work for possible mutations? Were you having symptoms or was this found with a routine cbc?