Connect
← Return to Hello, just recently diagnosed with a case of Bronchiectasis
Discussion
Hello, just recently diagnosed with a case of Bronchiectasis
MAC & Bronchiectasis | Last Active: Nov 22, 2023 | Replies (36)Comment receiving replies
For several years I have had CT's (for another cancer's surveillance) bronch and possible NTM keeps showing up; I failed 2 sputum tests and have had no symptoms. no treatment because I was stable. In the last few months I have developed a dry cough.
My PCP (also an infectious disease doc) who was following this issue retired. I live in Philadelphia and am a Penn Patient. I know there is a special clinic, but the pulmonologists are in one area and the infectious disease docs in another area...very hard to navigate this huge healthcare system. Would like to talk with you, if possible. Are you able to share any names of MD's. I just found a new PCP at Penn and will ask her to help me with this. I have the name of a pulmonologist at Lankenau, but Penn would be more convenient.
Thanks, in advance.
Replies to "For several years I have had CT's (for another cancer's surveillance) bronch and possible NTM keeps..."
Connect
I saw Dr Dorgan in the Bronchiectasis Clinic at Perelman Ctr. and really liked him. When I first tried Penn Pulmonary, I didn’t have a formal diagnosis, just abnormal X-rays and unsuccessful sputums. Because of that and self referral, I was only eligible for their second opinion program and my appt was MANY months out. I lucked out with call to Mayo. With a diagnosis, I tried again, sent records and was accepted. I chose doc from program based on reviews on their website. I imagine the process will be easier with a Penn doc to help. If you do a google search for “Penn Pulmonary Medicine,” it brings up different locations. Select Heron Lung Ctr then scroll down to their many different programs. Select and you’ll be able to see docs and reviews. Some work in a few programs.
You might be interested in Dr. Dorgsn’s comment that radiologists love to write, “consider MAC lung” when there’s ground glass, nodules, etc. because it’s a concrete suggestion.
Feel free to pm thru FB with questions. I’d also love info on your primary. I’m near Main Line Clinics, but their hospitals for specialists and tests are in convenient.