Upper right lobectomy for stage 1 adeno 1.8 x 1.3 x 1.3 cm anyone?
So I met with the surgeon and he feels confident that a lobectomy is the way to go as it is only stage one and this sounds great to me especially given that I was afraid it wouldn't be an option as there are nodules in all the lobes but now I'm a little scared 🙂 can anyone advise on what it is like to go through ?
Interested in more discussions like this? Go to the Lung Cancer Support Group.
Also just reading about side effects of Prednisone....there is a reason they tell you to take it in the morning!!!!
I am also taking Bactrim with it. I tend to have low potassium, so I am on prescription potassium (20mg/day) to stay in a healthy range. I check everything and discovered that Prednisone reduces potassium and Bactrim increases potassium. I informed my doctor, and we adjusted my daily dose to half for potassium, did blood work and I am in range. I wonder how many medications people take without consideration of other implications. Nobody brought it up, not the pharmacy ....one has to check things.
Yea. It’s not a maintenance drug. I was only on 20mg max so I happily accepted the energy boost but I took it before 6am and it had worn off before bedtime. Over 16 days I went from 20 mgx4 days to 15 to 10 to 5 to 0
I’d like one more round to see if I can get lasting reduction of inflammation in rib /diaphragm.
Bactrim? Do you have an active infection?
No infection, my Mayo pulmonologis prescribed Bactrim as protection against Prednisone (20mg or higher) which could cause a fungal infection in my lungs.
I am thinking, at least I am in a great energized mood with prednisone and not sad......it could go either way and I am not gaining weight.
Could you describe your rib/diaphragm issues? When I want to take a big breath, I feel a stiffness and like the muscles don't want to expand, or things stop halfway down. It feels unnatural so I breath out of my mouth a lot when active. No problem if I am just sitting down and then oxygen levels fine even up a point with the Prednisone.
I am taking before 8am, and wisely with food!!!!
My pain is as you describe. Neither diaphragm or rib cage seem to want to move sufficiently without effort. I suppose it could be pleural pain because I do have some scarring from the surgery, per the recent CT report
In the first 3 mos after my surgery I couldn’t naturally sneeze or yawn because that required deep quick breaths. I sort of swallowed them
Instead. Now I can but sometimes it seems I am only grabbing air from the top half of my lung. I had the lower lobe removed, so technically I am breathing from top half - though I believe that lobe descends into the space left behind. Sort of stretches out I believe.
Have any of you tried the slow stretching for you abdominal area and sides? Very slowly you stretch and bend. Mayo Clinic has videos for Yoga and the like. I did them and the tightness has gone away.
thanks so much for the suggestion, I have been meaning to try something like that
I only had a wedge resection upper left lobe and it feels like the lower lobes are not doing something. They have interstitial disease/scarring so that could be part of it. But I feel theproblem onthe outside. I had an issue with pleurisy in Nov 2022 from first VAT surgery RUL. Fortunately, it resolved with no help and is not a problem.
Wow do you have a link?
It’s Mayoclinic.org
Just type in Yoga. Here is a screen shot: