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Does anyone have chronic myeloid leukemia (CML)?
Blood Cancers & Disorders | Last Active: Feb 14 4:38am | Replies (64)Comment receiving replies
Hi, thank you for such an informative reply, it’s appreciated. I am so overwhelmed and haven’t even told my children. My husband only knew because I kept getting phone calls and blood draws. But he’s very supportive. I really do physical feel alone. Mentally I’m just trying to hold it all together for my family. My favorite thing to do is spend time with my 5 year old grandson and read the Bible. I’m a firm believer in Jesus Christ and know that nothing happens without Him allowing it. I just still can’t believe it though. I’m still in shock I guess. Lately when I’m not at work or around my family I just cry. I will continue to lean on the Lord and not my own understanding about this diagnosis. My oldest daughter knows about this and she is also supportive. She lives in another state, but we talk everyday. Thanks you so much for listening. I pray you are doing well I’m this situation as well.
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Hi Kim, I am doing very well, thank you. That’s the reason I’m here to offer other people with leukemia the gift of hope. Almost 5 years ago I was diagnosed with CML’s ugly and aggressive stepsister, AML. Much like you, I was seldom ever ill, had a super healthy and physically active lifestyle.
Because it’s termed Acute, the AML came on like a speeding freight train. Months of chemo and a bone marrow transplant got me in a durable remission. Now I’m fit, healthy and feel as though nothing ever happened. Occasionally I have a ‘hiccup’ related to the transplant but the cancer is gone and life is pretty normal.
Sometimes life just throws us a curveball over which we have no control! In my case, I acquired 3 DNA mutations which caused certain cells to proliferate out of control. My doctors have said there is no way to know what caused it. There can be stray gamma rays shooting through the earth, or whatever…that can just cause a random mutation. Your doctor will be checking your biopsy for mutations as well.
You have been diagnosed with CML. It tends to develop slowly. After your biopsy results are back your doctor will be able to develop a comprehensive treatment option plan for you. I think you’ll feel better knowing there’s a plan of action. Right now you feel helpless and overwhelmed.
I’m giving you a link for an article that gives you some good information on CML without overloading you. Knowledge is power but when you’re first diagnosed it’s an overload to get too much information at one time. There’s only so much you an absorb when you’re feeling shocked by the news. Truly, I know how you feel. https://my.clevelandclinic.org/health/diseases/21845-chronic-myelogenous-leukemia-cml
I’m happy you’ve told your daughter and you’ll know when it’s right to tell your other children. The support of your husband and your deep and abiding faith will all serve to get you through this. As a mom, you know the super powers you already possess. Your brain will wrap around this and you’ll realize you’ve already had this for some time and not much as changed. Your grandson will have his granny around a long time. ☺️
How many children do you have?