Connect
← Return to Any support for those who have been denied being living donor?
Discussion
Any support for those who have been denied being living donor?
Transplants | Last Active: Dec 15, 2023 | Replies (26)Comment receiving replies
I was also denied living kidney organ donor (through another hospital). I completed the evaluation, was told by the surgeon that the transplant is a go, but then later denied after my 24-hour creatinine clearance test showed my creatinine level was very low, not even within the threshold; I was told my creatinine has to be at least 90 to donate a kidney. When I asked if I could fix this (i. e., diet, etc) I was met with an emphatic “no”. I was devastated but not nearly as my best friend (the recipient) as I was the only one healthy enough to be the living organ donor. She is 75 years old and living organ donor is her only option; I am 65 years old and in excellent health.
I relied implicitly on the hospital staff to guide me through the process, but I should have done my homework. I was not aware that to be a living kidney organ donor, my creatinine must be at least 90; I was under the impression that the lower the creatinine, the healthier the kidney.
Replies to "I was also denied living kidney organ donor (through another hospital). I completed the evaluation, was..."
Connect
Pinay, my creatinine was also very low on my initial urine tests. When I saw the results posted, that's when I did the research, too. I understand how you feel, like I *should* have done that sooner. But I shot a message to my coordinator and told her it was low probably because I'm on a plant-based diet and I was willing to adjust it during the process and recovery. They told me there were other red flags but wanted to move forward. When I did the 24 hour collection, my creatinine levels were normal and I was so happy I was jumping up and down. Then, two days later, they denied me because of my Kappa Lambda test.
I don't know. You can do a lot of homework but there are so many factors and so many tests they run and, apparently, there are different standards depending on the hospital. I still do wrestle with how I *should* have known I wasn't healthy enough to donate or that there was something wrong so I get that.