← Return to Any support for those who have been denied being living donor?

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@debscherber

Hello @brokendoll and thank you for this brave post. You are correct, there is very little support for those seeking to be living donors. Yes, we have heard that we are living angels for trying, which is valued and appreciated. But some people just don't understand the deep impact a denial can bring for the potential donor. I have been in a similar situation, being denied as a living kidney donor, and then eventually denied as a living liver donor. I can tell you exactly where I was each time I got the difficult news. It is true that transplant centers have different criteria for their donors, some of which is hard to understand in relation to the need. (Some centers wouldn't even evaluate me due to my blood type, etc.) And I completely empathize with you in telling the intended recipient of the denial. It's been almost two years since I had to deliver that news and it breaks my heart again each time I tell that part of my journey. What I pray for most at this time is for your health and for you to get the answers YOU need right now. Throughout this process of evaluation I've learned so much about my health. I sincerely share with people who might be interested in living organ donation that going through this process, the life you save might be your own. I have ventured across the US to pursue living organ donation at other centers and I have been blessed to finally be approved through a program in Texas. But I have also learned that there is tremendous power in being an advocate for living organ donation and I am trying to be even louder with my advocacy voice. I would love to connect with you or anyone else who might want to sort through the ups and downs of the living organ donor process. These challenges certainly fill many chapters of my journey, one which I may publish someday soon. Be well and know someone in Minnesota is sending love your way!

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Replies to "Hello @brokendoll and thank you for this brave post. You are correct, there is very little..."

Thank you for that, Deb! Yesterday was the first day in a week I hadn't cried about this; I thought I had gone completely numb. But I can feel the tears stirring again! That's a good thing for me. I am not one to really let myself grieve losses like this but now I understand how healthy and vital it is. I would love to tell my story but it is just one tiny facet in a much larger one.