← Return to Any support for those who have been denied being living donor?

Discussion
Comment receiving replies
@gingerw

@brokendoll That must be heartbreaking for you! The thing with testing for possible transplant, a potential donor finds out just how healthy they truly are, physically/mentally/emotionally.

I am a multiple myeloma patient, and also a kidney patient. The kidney issue is not related to the myeloma. A few years ago I had asked at the transplant center in Portland [Oregon] if I would be considered for transplant, but they had said "no" due to the underlying kidney disease. My older sister had offered to be evaluated to be a living donor. I decided this week that I am going to contact them again to find out if their protocol will still exclude me.
Ginger

Jump to this post


Replies to "@brokendoll That must be heartbreaking for you! The thing with testing for possible transplant, a potential..."

Oh, yes. On some level I had this sinking feeling they'd find something. And I had been ignoring this lingering fatigue and hip and back pain I get sometimes. I just thought this is what my mid-40's look like. It's hard to know what's normal aging and what is something serious. How did you find out about your MM? And is it manageable at least?

Oh, I hope they reconsider. Please let me know what you hear!