← Return to Any support for those who have been denied being living donor?

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@brokendoll

My blood tests indicated I could have multiple myeloma so I was denied. I had applied 7 years ago to be an anonymous donor and they passed me at that time because of instability (I had had suicidal thoughts in the past) which I guess is fair. But, yeah, I can't begin to imagine being denied when you're trying to help your parent. It was hard enough after a few phone conversations with a relative stranger. Being face to face with that humanity is rough. Knowing how much someone is suffering and how long the wait for relief can be. Gosh, the waiting has got to be brutal 🙁

I am in a much more supportive space right now than 7 years ago so I decided to try again. I did ask my coordinator if I was tested negative for myeloma could I still donate but the team denied me since it's possible I could have MGUS. I thought about asking if we were compatible but it's a moot point. According to my team, I'm not compatible with anyone. At least not now.

On the bright side, I did speak to the recipient today and he's handling this a whole lot better than I am despite him being in the hospital, possibly over Thanksgiving. He told me he could have another potential donor; they are waiting on his compatibility test right now. I'm keeping my fingers crossed!

And sending all strength and healing to you.

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Replies to "My blood tests indicated I could have multiple myeloma so I was denied. I had applied..."

@brokendoll That must be heartbreaking for you! The thing with testing for possible transplant, a potential donor finds out just how healthy they truly are, physically/mentally/emotionally.

I am a multiple myeloma patient, and also a kidney patient. The kidney issue is not related to the myeloma. A few years ago I had asked at the transplant center in Portland [Oregon] if I would be considered for transplant, but they had said "no" due to the underlying kidney disease. My older sister had offered to be evaluated to be a living donor. I decided this week that I am going to contact them again to find out if their protocol will still exclude me.
Ginger