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JAK2 Mutation - Effects and Questions
Blood Cancers & Disorders | Last Active: Jun 19 5:59am | Replies (303)Comment receiving replies
I have ET Jak2 and I understand that we all react differently to medications....I have seen it mentioned that hydroxyurea has caused other people to develop sores in their mouth among other "problems". They are always small and only last a couple of days, and I am guessing it is from the pill touching my tongue. I have seen several mentions about handling this pill and washing your hands immediately after. For me, the sores in my mouth from taking this medication 4 times a week, is minimal and this is my only problem.....my platelet count has been within the normal range for the past six months, and for that I am grateful and willing to put up with these small areas on my tongue. Does anyone else have this side effect as an ongoing situation?
Replies to "I have ET Jak2 and I understand that we all react differently to medications....I have seen..."
Mouth sores are the only problem I have had from hydroxyurea. My doctor suggested gargling with a pinch of salt and a pinch of baking soda before I take my pill. That has really worked well for me.
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Hydration is very helpful in preventing the mouth sores...take a full tall glass iof water with your hydrea and at least five more full glasses of water during the day...this helps your body take in the med to do it's work and then to flush it out so that it doesn't build up in your system. It's the buildup in your system that causes the mouth sores.