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DiscussionHave you been cured of POST COVID?
Post-COVID Recovery & COVID-19 | Last Active: Dec 8 2:38pm | Replies (119)Comment receiving replies
Replies to "My son has had LC ME/ CFS symptoms since summer of 2022. We have tried several..."
@acuozzo after working with many specialists here in Charleston SC I finally went to Mayo Rochester and I am following their program. I am feeling better, not 100% but hopefully on my way to LC being a memory. I have had it since my booster in November 2021. It's a long story (there are a dozen parts to my plan) but one of the tenets that stuck with me is that one needs to approach recovery as if you are an injured athlete. I mention this because you mention that your son is an athlete once training for marathon. I was told by my Neurologist here in SC to keep exercising at my old levels "it'll make you feel better", wrong answer! That level was driving me backwards away from recovery. Where I was once exercising 45 minutes aerobic, Mayo has me at 10 minutes resistance (muscle focused not cardio focused). If your son isn't following a moderation approach he will not recover. I wish you and your son well and strongly urge your son to go to Mayo or another clinic where they have a proven LC recovery program.
I formerly posted my miracle turn-around. After 3 yeas of LC, I was finally given a Tilt Table Test, and subsequently, diagnosed with POTS (postural orthostatic tachycardia syndrome). I am now taking a medicine called Pyridostigmine. I have so much more energy and very few LC symptoms anymore. I worked with a Neurologist to get where I am.
Good luck.