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Anyone have Cutaneous T Cell Lymphoma?

Blood Cancers & Disorders | Last Active: 1 day ago | Replies (174)

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@somde

Although we all have some disorder to discuss, we have to be empathic to all suffering and be supportive even if we listen to a story. It all helps us in many ways. Especially that we are not alone. I also am from Canada.

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Replies to "Although we all have some disorder to discuss, we have to be empathic to all suffering..."

@somde, can you share your diagnosis & treatment journey with us? In 2017 I was diagnosed with psoriasis and was being treated with biologics without much success. In summer of last year my WBC spiralled to 10x normal level & I was referred to a haematologist who, after blood work, diagnosed T Cell lymphoma & sent me to an oncologist who, after several tests diagnosed the Sezary. Treatment started end January.
Very pleased to have a cancer clinic in close proximity to us.
Knowing the extent of the symptoms of this illness I sympathize with anyone affected. There may not be a cure but we know that it is treatable.
Not life threatening, just life changing. Stay positive, you will get through this.