Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

@virtuous69

Victorious69 Hello group. Not been on Mayo Connect for some time, but I want to start a discussion on this year's flu shot. Not sure which group I should pop into. I know that no one is to give medical advise as to whether or not to get this years flu shot. I never get a flu shot, because I have Fibromyalgia and my body would attempt to attack my body overkill. I'm just asking your personal experience and how you came by your decision OK?
The CDC and the media are making a massive plea to get flu shots while there is still time. Death tolls are rising, and this is a particularly dangerous strain. I research and this is what I know and why I;m asking your experience: My husband and I are flying sometime in February (peak season for the flu) a one hour flight with friends from San Jose to North Los Vegas. . I also know that some componets like mercury may stay in your body and some vaccines do not contain any mercury. The deaths of two healthy victims in California got the flu shot and died anyway. CDC says only vaccine is only 30 percent down to maybe 10 percent effective against the 3 strains H1N1 and others and may help to make the influenza less dangerous. Being on a plane load of people and virus germs that can live forever on the back of the plane seat cushions, leaves me feeling not very brave.
I am 70 years old this month, have Fibromyalgia, CSF( Epstein Barr) among other ailments. I choose not to get the flu shot as I have believed it would cause my overactive immune system to do just that: overreact. My doctor leaves the decision up to me.
Some neighbors and friends did get the flu shot and got very sick anyway. One couple flew by plane to India over Christmas vacation 16+ hours in not the best circulated air on plane.Husband got the flu shot and got very sick anyway going to India. And got it again flying back. The wife did not take the flu shot and did not get the flu from her husband, Normally I would not be concerned: I am prone to bronchitis every other year or so and take an inhaler for ashma during allergy season. Cough continues for 3 months. I only got two bad flus: in my life:, the Spanish Flu,and the swine flu. Thought I would never stop throwing up. CDC now says that breath molecules can travel through the air just by breathing:not even propelled by a cough or sneeze. Ain;t that encouraging. 🙁
So what has been your expererince so far and how you came by your decision.? I will probably wear a mask on the plane and at the casino where we'll go to have a special dinner .for my birthday. Sorry question is so long..........

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here's another goodie. i got the flu shot but, should i get the pneumonia shot? along with RA and PA i have COPD, sleep apnea, restless leg, diabetes, hypothyroidism high blood pressure, angina, etc, etc. have been putting it off. would appreciate.

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@baxtersmom

Thank you for your comments on those of us who find narcotics helpful. I have been taking them for many years responsibly with the care a very forward-thinking well-trained pain management doctor. He is trying his best to deal with all the regulations and does a lot to help minimize the hassle for his patients who have shown him they are responsible and trustworthy with these medications. I never feel like I am being treated like a drug-addict. Without these medications my career (I am a professor at a major University) would have ended years ago because I would not have been able to keep teaching and being on my feet for all these years. I encourage people to find a good pain management doctor who shows them the respect and trust and care that they deserve. My pain management doctor also does many different things and recognizes that pain management medicine is not a one size fits all practice. He uses injections, nutrition, spinal cord stimulation, supplements, and many new and cutting edge techniques. He also refers to other doctors and practitioners who he thinks may be helpful. He is very available to me and his office is extremely responsive. His care kept me out of a surgery that I think I would have regretted many many years ago. This is what we all deserve and while I have terrible pain almost every day which increases as I get older, I know that I can continue the search that we all are on for what works for us with the help of a caring and knowledgeable doctor. It took me a long time to find him. When I began my search, he was probably still in medical school. I guess my message is don't give up on finding good pain management people. And speak up in defense of those of us who use narcotic medications responsibly. We need to advocate for ourselves.

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from a paranoid point of view: i do not think most of the doctors give enough time to the patient to consider a proper way of treatment for the individual. and we are all individuals. were is the time? to me, most doctors are considering the money aspect. the more time spent on the patient, the less patients to be seen so the less money comes into the coffers. sometimes the attitude is so blatant it shows. but then what can they do? they are waiting for the pharmacuetical companies and the research companies to give them more answers to use for their patients. BUT ONE MORE VERY IMPORTANT ISSUE IS "THEY DO NOT SPEND THE TIME TO SEE IF THE DIFFERENT MEDICATIONS PRESCRIBED TO THEIR PATIENTS BY OTHER DOCTORS COMPLICATE OR DISAGREE WITH EACH OTHER. THERE IS SO MUCH TO BE CONSIDERED AND EVALUATED. WHERE IS THE GUIDENCE FOR THE DOCTORS TO FOLLOW? oh well, only trying to help us and the doctors. careingly, peach

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@virtuous69

Victorious69 Hello group. Not been on Mayo Connect for some time, but I want to start a discussion on this year's flu shot. Not sure which group I should pop into. I know that no one is to give medical advise as to whether or not to get this years flu shot. I never get a flu shot, because I have Fibromyalgia and my body would attempt to attack my body overkill. I'm just asking your personal experience and how you came by your decision OK?
The CDC and the media are making a massive plea to get flu shots while there is still time. Death tolls are rising, and this is a particularly dangerous strain. I research and this is what I know and why I;m asking your experience: My husband and I are flying sometime in February (peak season for the flu) a one hour flight with friends from San Jose to North Los Vegas. . I also know that some componets like mercury may stay in your body and some vaccines do not contain any mercury. The deaths of two healthy victims in California got the flu shot and died anyway. CDC says only vaccine is only 30 percent down to maybe 10 percent effective against the 3 strains H1N1 and others and may help to make the influenza less dangerous. Being on a plane load of people and virus germs that can live forever on the back of the plane seat cushions, leaves me feeling not very brave.
I am 70 years old this month, have Fibromyalgia, CSF( Epstein Barr) among other ailments. I choose not to get the flu shot as I have believed it would cause my overactive immune system to do just that: overreact. My doctor leaves the decision up to me.
Some neighbors and friends did get the flu shot and got very sick anyway. One couple flew by plane to India over Christmas vacation 16+ hours in not the best circulated air on plane.Husband got the flu shot and got very sick anyway going to India. And got it again flying back. The wife did not take the flu shot and did not get the flu from her husband, Normally I would not be concerned: I am prone to bronchitis every other year or so and take an inhaler for ashma during allergy season. Cough continues for 3 months. I only got two bad flus: in my life:, the Spanish Flu,and the swine flu. Thought I would never stop throwing up. CDC now says that breath molecules can travel through the air just by breathing:not even propelled by a cough or sneeze. Ain;t that encouraging. 🙁
So what has been your expererince so far and how you came by your decision.? I will probably wear a mask on the plane and at the casino where we'll go to have a special dinner .for my birthday. Sorry question is so long..........

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Dear Peach, It should be a "no brainer" when one has COPD---that getting the pneumonia vaccine is of paramount importance. WHAT HAVE YOU BEEN THINKING-?......................Excuse my adamance, but I'm gob-smacked with your unschooled qualms.

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@virtuous69

Victorious69 Hello group. Not been on Mayo Connect for some time, but I want to start a discussion on this year's flu shot. Not sure which group I should pop into. I know that no one is to give medical advise as to whether or not to get this years flu shot. I never get a flu shot, because I have Fibromyalgia and my body would attempt to attack my body overkill. I'm just asking your personal experience and how you came by your decision OK?
The CDC and the media are making a massive plea to get flu shots while there is still time. Death tolls are rising, and this is a particularly dangerous strain. I research and this is what I know and why I;m asking your experience: My husband and I are flying sometime in February (peak season for the flu) a one hour flight with friends from San Jose to North Los Vegas. . I also know that some componets like mercury may stay in your body and some vaccines do not contain any mercury. The deaths of two healthy victims in California got the flu shot and died anyway. CDC says only vaccine is only 30 percent down to maybe 10 percent effective against the 3 strains H1N1 and others and may help to make the influenza less dangerous. Being on a plane load of people and virus germs that can live forever on the back of the plane seat cushions, leaves me feeling not very brave.
I am 70 years old this month, have Fibromyalgia, CSF( Epstein Barr) among other ailments. I choose not to get the flu shot as I have believed it would cause my overactive immune system to do just that: overreact. My doctor leaves the decision up to me.
Some neighbors and friends did get the flu shot and got very sick anyway. One couple flew by plane to India over Christmas vacation 16+ hours in not the best circulated air on plane.Husband got the flu shot and got very sick anyway going to India. And got it again flying back. The wife did not take the flu shot and did not get the flu from her husband, Normally I would not be concerned: I am prone to bronchitis every other year or so and take an inhaler for ashma during allergy season. Cough continues for 3 months. I only got two bad flus: in my life:, the Spanish Flu,and the swine flu. Thought I would never stop throwing up. CDC now says that breath molecules can travel through the air just by breathing:not even propelled by a cough or sneeze. Ain;t that encouraging. 🙁
So what has been your expererince so far and how you came by your decision.? I will probably wear a mask on the plane and at the casino where we'll go to have a special dinner .for my birthday. Sorry question is so long..........

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Of course you should especially with all your lung problems you want to protect your lungs and heart

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@virtuous69

Victorious69 Hello group. Not been on Mayo Connect for some time, but I want to start a discussion on this year's flu shot. Not sure which group I should pop into. I know that no one is to give medical advise as to whether or not to get this years flu shot. I never get a flu shot, because I have Fibromyalgia and my body would attempt to attack my body overkill. I'm just asking your personal experience and how you came by your decision OK?
The CDC and the media are making a massive plea to get flu shots while there is still time. Death tolls are rising, and this is a particularly dangerous strain. I research and this is what I know and why I;m asking your experience: My husband and I are flying sometime in February (peak season for the flu) a one hour flight with friends from San Jose to North Los Vegas. . I also know that some componets like mercury may stay in your body and some vaccines do not contain any mercury. The deaths of two healthy victims in California got the flu shot and died anyway. CDC says only vaccine is only 30 percent down to maybe 10 percent effective against the 3 strains H1N1 and others and may help to make the influenza less dangerous. Being on a plane load of people and virus germs that can live forever on the back of the plane seat cushions, leaves me feeling not very brave.
I am 70 years old this month, have Fibromyalgia, CSF( Epstein Barr) among other ailments. I choose not to get the flu shot as I have believed it would cause my overactive immune system to do just that: overreact. My doctor leaves the decision up to me.
Some neighbors and friends did get the flu shot and got very sick anyway. One couple flew by plane to India over Christmas vacation 16+ hours in not the best circulated air on plane.Husband got the flu shot and got very sick anyway going to India. And got it again flying back. The wife did not take the flu shot and did not get the flu from her husband, Normally I would not be concerned: I am prone to bronchitis every other year or so and take an inhaler for ashma during allergy season. Cough continues for 3 months. I only got two bad flus: in my life:, the Spanish Flu,and the swine flu. Thought I would never stop throwing up. CDC now says that breath molecules can travel through the air just by breathing:not even propelled by a cough or sneeze. Ain;t that encouraging. 🙁
So what has been your expererince so far and how you came by your decision.? I will probably wear a mask on the plane and at the casino where we'll go to have a special dinner .for my birthday. Sorry question is so long..........

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@peach414144

Yes, my dear, you should without any doubt get that pneumonia vaccine. Make haste to your nearest pharmacy or at a doctors visit.

🙂
Lynne

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@virtuous69

Victorious69 Hello group. Not been on Mayo Connect for some time, but I want to start a discussion on this year's flu shot. Not sure which group I should pop into. I know that no one is to give medical advise as to whether or not to get this years flu shot. I never get a flu shot, because I have Fibromyalgia and my body would attempt to attack my body overkill. I'm just asking your personal experience and how you came by your decision OK?
The CDC and the media are making a massive plea to get flu shots while there is still time. Death tolls are rising, and this is a particularly dangerous strain. I research and this is what I know and why I;m asking your experience: My husband and I are flying sometime in February (peak season for the flu) a one hour flight with friends from San Jose to North Los Vegas. . I also know that some componets like mercury may stay in your body and some vaccines do not contain any mercury. The deaths of two healthy victims in California got the flu shot and died anyway. CDC says only vaccine is only 30 percent down to maybe 10 percent effective against the 3 strains H1N1 and others and may help to make the influenza less dangerous. Being on a plane load of people and virus germs that can live forever on the back of the plane seat cushions, leaves me feeling not very brave.
I am 70 years old this month, have Fibromyalgia, CSF( Epstein Barr) among other ailments. I choose not to get the flu shot as I have believed it would cause my overactive immune system to do just that: overreact. My doctor leaves the decision up to me.
Some neighbors and friends did get the flu shot and got very sick anyway. One couple flew by plane to India over Christmas vacation 16+ hours in not the best circulated air on plane.Husband got the flu shot and got very sick anyway going to India. And got it again flying back. The wife did not take the flu shot and did not get the flu from her husband, Normally I would not be concerned: I am prone to bronchitis every other year or so and take an inhaler for ashma during allergy season. Cough continues for 3 months. I only got two bad flus: in my life:, the Spanish Flu,and the swine flu. Thought I would never stop throwing up. CDC now says that breath molecules can travel through the air just by breathing:not even propelled by a cough or sneeze. Ain;t that encouraging. 🙁
So what has been your expererince so far and how you came by your decision.? I will probably wear a mask on the plane and at the casino where we'll go to have a special dinner .for my birthday. Sorry question is so long..........

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And YOU, @jeannegordon4, need to settle down and be courteous to other members. Not only was that rude, but the idea of forums like this one is so that people won’t feel intimidated about asking important questions. You insulted @peach414144 at several turns, and for no good reason. Yes, it’s important that she get that vaccine. No, she is not “no-brained” nor unschooled, and that much is obvious.

We are also here for mutual support, to the degree that we are able to give it from one day to the next. Reconsider the kind of response you might give, next time you are gob-smacked.

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@virtuous69

Victorious69 Hello group. Not been on Mayo Connect for some time, but I want to start a discussion on this year's flu shot. Not sure which group I should pop into. I know that no one is to give medical advise as to whether or not to get this years flu shot. I never get a flu shot, because I have Fibromyalgia and my body would attempt to attack my body overkill. I'm just asking your personal experience and how you came by your decision OK?
The CDC and the media are making a massive plea to get flu shots while there is still time. Death tolls are rising, and this is a particularly dangerous strain. I research and this is what I know and why I;m asking your experience: My husband and I are flying sometime in February (peak season for the flu) a one hour flight with friends from San Jose to North Los Vegas. . I also know that some componets like mercury may stay in your body and some vaccines do not contain any mercury. The deaths of two healthy victims in California got the flu shot and died anyway. CDC says only vaccine is only 30 percent down to maybe 10 percent effective against the 3 strains H1N1 and others and may help to make the influenza less dangerous. Being on a plane load of people and virus germs that can live forever on the back of the plane seat cushions, leaves me feeling not very brave.
I am 70 years old this month, have Fibromyalgia, CSF( Epstein Barr) among other ailments. I choose not to get the flu shot as I have believed it would cause my overactive immune system to do just that: overreact. My doctor leaves the decision up to me.
Some neighbors and friends did get the flu shot and got very sick anyway. One couple flew by plane to India over Christmas vacation 16+ hours in not the best circulated air on plane.Husband got the flu shot and got very sick anyway going to India. And got it again flying back. The wife did not take the flu shot and did not get the flu from her husband, Normally I would not be concerned: I am prone to bronchitis every other year or so and take an inhaler for ashma during allergy season. Cough continues for 3 months. I only got two bad flus: in my life:, the Spanish Flu,and the swine flu. Thought I would never stop throwing up. CDC now says that breath molecules can travel through the air just by breathing:not even propelled by a cough or sneeze. Ain;t that encouraging. 🙁
So what has been your expererince so far and how you came by your decision.? I will probably wear a mask on the plane and at the casino where we'll go to have a special dinner .for my birthday. Sorry question is so long..........

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@virtuous69

I see you’ve been thinking a lot about the flu situation especially with regard to your birthday celebration coming up in Las Vegas. It also looks to me like you may be under some misapprehensions about certain aspects of influenza. I’m glad you thought to ask about them. I might ask your doc about all these if I were you; heck, even bring him/her your letter above so each thing can be addressed by a pro.

First, I surely hope you can go on your plane ride and enjoy your trip worry free, with just a few sensible precautions (AFTER you get your flu shot).
•Get ANTI-VIRAL masks, not the regular ones at the drugstore. Ask the pharmacy folks where they are.
•Get small bottles of alcohol-based hand sanitizer to have with you, and use it often.
This is how long viruses live on various surfaces, according to :
“Flu viruses capable of being transferred to hands and causing an infection can survive on hard surfaces for 24 hours. Infectious flu viruses can survive on tissues for only 15 minutes. Like cold viruses, infectious flu viruses survive for much shorter periods on the hands.” So, please worry less about that. Just wear your mask, sanitize your hands on the plane, and realize that a 1-hour flight is very short.

(The Spanish Flu has been extinct since 1918 or so, and vomiting with influenza is rare except with very young children. It’s a respiratory illness, not GI. It might’ve been the flu when you had vomiting, but that’s not the primary symptom.)

Fibromyalgia isn’t an autoimmune illness, fortunately, so your fears about your body overreacting are likely unfounded. But ASK YOUR DOC. (I have fibromyalgia; they always have me get the flu shot, plus the pneumonia one.)

I surely hope you’ll get all necessary reassurances and instructions from your healthcare folks. It’s hard enough to have these ailments without unanswered concerns stealing joy from your special trip and birthday celebration. I’ll be thinking of you next month and your nice trip; hope you’ll write in and tell us how it was!
XO
Lynne

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@virtuous69

Victorious69 Hello group. Not been on Mayo Connect for some time, but I want to start a discussion on this year's flu shot. Not sure which group I should pop into. I know that no one is to give medical advise as to whether or not to get this years flu shot. I never get a flu shot, because I have Fibromyalgia and my body would attempt to attack my body overkill. I'm just asking your personal experience and how you came by your decision OK?
The CDC and the media are making a massive plea to get flu shots while there is still time. Death tolls are rising, and this is a particularly dangerous strain. I research and this is what I know and why I;m asking your experience: My husband and I are flying sometime in February (peak season for the flu) a one hour flight with friends from San Jose to North Los Vegas. . I also know that some componets like mercury may stay in your body and some vaccines do not contain any mercury. The deaths of two healthy victims in California got the flu shot and died anyway. CDC says only vaccine is only 30 percent down to maybe 10 percent effective against the 3 strains H1N1 and others and may help to make the influenza less dangerous. Being on a plane load of people and virus germs that can live forever on the back of the plane seat cushions, leaves me feeling not very brave.
I am 70 years old this month, have Fibromyalgia, CSF( Epstein Barr) among other ailments. I choose not to get the flu shot as I have believed it would cause my overactive immune system to do just that: overreact. My doctor leaves the decision up to me.
Some neighbors and friends did get the flu shot and got very sick anyway. One couple flew by plane to India over Christmas vacation 16+ hours in not the best circulated air on plane.Husband got the flu shot and got very sick anyway going to India. And got it again flying back. The wife did not take the flu shot and did not get the flu from her husband, Normally I would not be concerned: I am prone to bronchitis every other year or so and take an inhaler for ashma during allergy season. Cough continues for 3 months. I only got two bad flus: in my life:, the Spanish Flu,and the swine flu. Thought I would never stop throwing up. CDC now says that breath molecules can travel through the air just by breathing:not even propelled by a cough or sneeze. Ain;t that encouraging. 🙁
So what has been your expererince so far and how you came by your decision.? I will probably wear a mask on the plane and at the casino where we'll go to have a special dinner .for my birthday. Sorry question is so long..........

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Dear lynn, when a poster initiates with a flippant statement---"here's another goodie", that I find hard to take seriously and feel is not taking this forum seriously---I'm going to let them know how I feel about their frivolousness. THE POST WAS INSULTING, NOT MY RESPONSE...At my age (78) I don't have time for silliness......I've live "settled down" too long.

Jeanne

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@virtuous69

Victorious69 Hello group. Not been on Mayo Connect for some time, but I want to start a discussion on this year's flu shot. Not sure which group I should pop into. I know that no one is to give medical advise as to whether or not to get this years flu shot. I never get a flu shot, because I have Fibromyalgia and my body would attempt to attack my body overkill. I'm just asking your personal experience and how you came by your decision OK?
The CDC and the media are making a massive plea to get flu shots while there is still time. Death tolls are rising, and this is a particularly dangerous strain. I research and this is what I know and why I;m asking your experience: My husband and I are flying sometime in February (peak season for the flu) a one hour flight with friends from San Jose to North Los Vegas. . I also know that some componets like mercury may stay in your body and some vaccines do not contain any mercury. The deaths of two healthy victims in California got the flu shot and died anyway. CDC says only vaccine is only 30 percent down to maybe 10 percent effective against the 3 strains H1N1 and others and may help to make the influenza less dangerous. Being on a plane load of people and virus germs that can live forever on the back of the plane seat cushions, leaves me feeling not very brave.
I am 70 years old this month, have Fibromyalgia, CSF( Epstein Barr) among other ailments. I choose not to get the flu shot as I have believed it would cause my overactive immune system to do just that: overreact. My doctor leaves the decision up to me.
Some neighbors and friends did get the flu shot and got very sick anyway. One couple flew by plane to India over Christmas vacation 16+ hours in not the best circulated air on plane.Husband got the flu shot and got very sick anyway going to India. And got it again flying back. The wife did not take the flu shot and did not get the flu from her husband, Normally I would not be concerned: I am prone to bronchitis every other year or so and take an inhaler for ashma during allergy season. Cough continues for 3 months. I only got two bad flus: in my life:, the Spanish Flu,and the swine flu. Thought I would never stop throwing up. CDC now says that breath molecules can travel through the air just by breathing:not even propelled by a cough or sneeze. Ain;t that encouraging. 🙁
So what has been your expererince so far and how you came by your decision.? I will probably wear a mask on the plane and at the casino where we'll go to have a special dinner .for my birthday. Sorry question is so long..........

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@jeannegordon4 @lynneb2110 and all Connect members - this is just a reminder that we all (including myself) need to follow the Mayo Connect Community Guidelines -- https://connect.mayoclinic.org/community-guidelines/

It's important that we should always be polite and respectful at all times. This helps make Connect a place where anyone can ask a question without being judged. We all struggle through this life and anytime we can offer others a helping hand or provide information that we have learned through our own personal experience it's a good thing.

Hoping for a pain free day for all.

John

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@virtuous69

Victorious69 Hello group. Not been on Mayo Connect for some time, but I want to start a discussion on this year's flu shot. Not sure which group I should pop into. I know that no one is to give medical advise as to whether or not to get this years flu shot. I never get a flu shot, because I have Fibromyalgia and my body would attempt to attack my body overkill. I'm just asking your personal experience and how you came by your decision OK?
The CDC and the media are making a massive plea to get flu shots while there is still time. Death tolls are rising, and this is a particularly dangerous strain. I research and this is what I know and why I;m asking your experience: My husband and I are flying sometime in February (peak season for the flu) a one hour flight with friends from San Jose to North Los Vegas. . I also know that some componets like mercury may stay in your body and some vaccines do not contain any mercury. The deaths of two healthy victims in California got the flu shot and died anyway. CDC says only vaccine is only 30 percent down to maybe 10 percent effective against the 3 strains H1N1 and others and may help to make the influenza less dangerous. Being on a plane load of people and virus germs that can live forever on the back of the plane seat cushions, leaves me feeling not very brave.
I am 70 years old this month, have Fibromyalgia, CSF( Epstein Barr) among other ailments. I choose not to get the flu shot as I have believed it would cause my overactive immune system to do just that: overreact. My doctor leaves the decision up to me.
Some neighbors and friends did get the flu shot and got very sick anyway. One couple flew by plane to India over Christmas vacation 16+ hours in not the best circulated air on plane.Husband got the flu shot and got very sick anyway going to India. And got it again flying back. The wife did not take the flu shot and did not get the flu from her husband, Normally I would not be concerned: I am prone to bronchitis every other year or so and take an inhaler for ashma during allergy season. Cough continues for 3 months. I only got two bad flus: in my life:, the Spanish Flu,and the swine flu. Thought I would never stop throwing up. CDC now says that breath molecules can travel through the air just by breathing:not even propelled by a cough or sneeze. Ain;t that encouraging. 🙁
So what has been your expererince so far and how you came by your decision.? I will probably wear a mask on the plane and at the casino where we'll go to have a special dinner .for my birthday. Sorry question is so long..........

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Thank you, John for linking to the Community Guidelines https://connect.mayoclinic.org/community-guidelines/.
A reminder to all - Connect is built on trust and respect. Let's keep it that way.

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