I have a Neurologist I “check in” with. I moved within several states over the past 7 years, so it seems while we start out with 4 month visit intervals, it tends to get stretched to 6-12 months between visits after. Since I’m idiopathic and it’s believed that all meaningful (negative) diagnostics have been done, my Neurologist is just a check-in on any changes to see if my Gabapentin is still my best defense, and he has the ability to do EMG’s if needed to review.
I find my PCP is my best friend in helping me along with Neurological care while managing my overall health program. They can also refill my Gabapentin if needed and offers ideas on what I might discuss with my Neurologist on my next visit. My current PCP is actually taking ownership of getting me lined up for Neuro genetic testing, something no Neurologist has ever offered or suggested for me. Since I see her more often, she seems more in tune to my goal of staying on my feet safely and doing whatever I can, if possible, to not regress. My PCPs, not my Neurologists, have coordinated physical therapy and podiatrist referrals, and even acupuncture when one asked if I wanted to try it for my Neuropathy.
I think it’s important for me to have a Neurologist, but I find in my experiences that they desire to be diagnostic, and in my case have run out of ideas, so I’ve had diminishing returns with them over my 7 years with PN. But my PCP’s have offered the therapeutic assistance in dealing with what the Neurologist diagnosed, and keeping all parts of my body working together so I can have the most optimal life. That’s what I’ve accepted as working for me!