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Polyneuropathy. electric cell signaling treatment (ECST)

Neuropathy | Last Active: Nov 16, 2023 | Replies (4)

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@johnbishop

Hello @darina, Welcome to Connect. There is another discussion on the electric cell-signaling treatment (EcST) and also several others on polyneuropathy that you might find helpful to learn what others have shared:
--- Does anybody have experience with SANEXAS for neuropathy?: https://connect.mayoclinic.org/discussion/sanexas/
--- Idiopathic Polyneuropathy: My endless journey to a near-diagnosis: https://connect.mayoclinic.org/discussion/idiopathic-polyneuropathy-my-endless-journey-to-a-near-diagnosis/
--- Polyneuropathy: https://connect.mayoclinic.org/discussion/polyneuropathy-2/.

Also, the Foundation for Peripheral Neuropathy is a great resource for research and treatment information. Here is a list of information on their website for polyneuropathy: https://www.foundationforpn.org/?s=polyneuropathy.

You mentioned vitamin B12 deficiency. Does your doctor think it might be connected to your polyneuropathy symptoms?

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Replies to "Hello @darina, Welcome to Connect. There is another discussion on the electric cell-signaling treatment (EcST) and..."

Yes ,my primary care physician thinks exactly like that! That this is related to vitamin B12 deficiency …
Really, could it manifest like that? Pain,,burning and needles all over?
And if it is-well…
Hopefully, it’s still treatable.and reversible:)
but my symptoms started year ago with some kinda acute low abdomen pain. -still -unknowing origin.
I didn’t know what was my level of B12 then. I have heard that metformin can cause vitamin B12 deficiency . But usually it is happening several years on the row.. She prescribed me B12 injections-first , she said, once in month. Now- every day for a week, and after-once in week 3 times and I am taking vitamins too now:)
It just strange, how suddenly and strong it started and how quickly progressing…
Like-everyday-something new. I am having pain in places that I never had before…
Also, about ANA-she said-positive ANA does not appear to be significant.
Actually, I am scheduled to start treatment in this clinic -NEuropathy treatment clinic of Texas next week. But I didn’t have a consultation there yet.
My insurance supposed to cover it.
Do you think I should postpone it? Of course, would be better to see doctor before, but-You see, I can’t see neurologist soon. Maybe- best case scenario-in couple month only.
Pain is getting stronger , gabapentin it’s not helping much, I am waking up with numbness fingers..
So- obviously I am worried and want to try something, until it’s not too late.
Year ago , all I was taking, just Exedrin sometimes-for a headache …:(
Thank you for your answer!