You truly are new to this diagnosis, and of course your responses are fresh. I am going to tell you something about myself but it is not for you to find a comparison. My response to getting cancer had not one element of fear. I tell you that because everything I have learned about dealing with myeloma, has shown me that living happily with that diagnosis is very possible. I am quite the odd duck in having that response, but it has served me well as you can imagine. I went from MGUS to smoldering myeloma in less than 2 years. It will be 20 years ago next October! I was on watch and wait until 2016 when it was determined that I needed to start treatment. Now this is the piece I want you and your husband to consider. If I had spent those years worrying instead of finding a way to maintain a good quality life, what would that have looked like? When you guys have had stressful events, can you say how you dealt with them? Because you did get through successfully. And you can do it again. Would you like to find a way to enjoy life while keeping myeloma on a back burner? It is possible and I would like to help you do that. In fact I am doing exactly that again because I have been on watch and wait again for the last couple years as my numbers increase, but I understand what is happening, and know what I need to do. Can you think what I may be able to do to help you cope and get to a better place with this diagnosis?
Nancy