Connect
← Return to My Mets Breast Cancer Story: Questions about Low WBC, spots on liver
Discussion
My Mets Breast Cancer Story: Questions about Low WBC, spots on liver
Breast Cancer | Last Active: Jan 25 4:29pm | Replies (38)Comment receiving replies
Hello All, Diagnosed 3 months ago with breast cancer met to several bone areas. Was dx with breast ca 4 years ago. Very small, HR+, no lymph node involvement. Lumpectomy and rad. Placed on aromatose inhibitors. Needless to say was a shock to hear about the spread which was found as an incidental finding for a lower spine x-ray. Very active, runner, healthy lifestyle and a RN. Treatment for this bone met Ibrance, Zometa, an d Fulvestrant. Feel good. Minimal side effects. Repeat PET scan this week to see how it is going. Bone hot spots responding well to treatment. One hot spot gone. One hot spot hotter. The scan did show a very small minimally active spot on my liver. Question to y'all....what are the treatment options for the very small liver spot?
Replies to "Hello All, Diagnosed 3 months ago with breast cancer met to several bone areas. Was dx..."
So sorry about your bone and liver Mets. Just curious did you have Oncotype done when first diagnosed ? Was you breast cancer lobular or ductal? How big was your original tumor? I assume your were HER2 negative. Glad treatments are helping . I wish you nothing but the best! Take care.
Tumor
Histologic Type: Invasive ductal carcinoma of no special type (invasive ductal carcinoma, not otherwise specified) Histologic Grade (Nottingham Histologic Score): Nottingham Score
Glandular (Acinar) / Tubular Differentiation: Score 1 Nuclear Pleomorphism: Score 2
Mitotic Rate: Score 1
Overall Grade: Grade 1 (scores of 3, 4 or 5)
Tumor Size: 9.0 mm
HER2 Positive
Onocotype not done as I was considered very low risk.
If you were HER positive, didn't you have chemo and herceptin?
Not with my profile and findings. Standard treatment for small no lymph involvement is to have just radiation and AI.
May I ask how old are you? Where do you live?
I am 71 and live in Asheville NC. I have lived healthy all my life. Avid runner and hiker. No history of breast ca in any of my family.
I want to wish you the best and please stay in touch here. It’d be good to hear from you again. We need all the help/ support we can get. This is definitely a journey!!!
Have they checked to see if you are Alfa-1? It’s something I have just learned about since diagnosed with breast cancer, stage 1. My Neice has this disease. This disease can cause liver failure. It involves the lungs too. I only know about it through my Neice and when I called her to find out about our family history. I have 5 spots on my lungs, no symptoms. This was found out through an MRI that picked up part of my lung when getting ready for my lumpectomy surgery. There’s a research foundation called Alpha-1 Research with UF, University of Florida. You can be tested for free. I don’t know if cancer and this disease is related but if you have it, you need to know.
Let us know how you’re doing!!! Hugs.
Thanks for the link.
Connect
@maliamd Wow, I would be shocked to hear about the spread too based on your initial diagnosis and treatment. I'm so sorry to hear that. I'm happy that the targeted meds are working well for you and you're feeling good! Don't know about the typical liver spot treatment, but keep an eye on leeann66 who is doing a clinical trial for her metastatic breast cancer and it's working great. Stage III trial on Tropion. Who knows when it will be FDA approved, but hopefully by the time any of us need it.
https://connect.mayoclinic.org/discussion/something-new-in-the-treatment-arsenal/?pg=2
Also, histotripsy is a new FDA approved ultrasound treatment for malignant liver tumors. Check out threads on that.
https://connect.mayoclinic.org/discussion/histotripsy/
So far only a couple cancer centers have signed up for it because it's expensive to implement and insurance coverage is unknown. I'm not sure which facilities, but my IR thought Cleveland Clinic may be one of them, but not sure. Prayers for you.