I was diagnosed 2 years ago although it started in 2019. It is an indolent cancer but my platelets are hanging in around 95 but my spleen is getting quite large. I get blood work every 6 months and am told if I start to feel crummy, then obviously go in. It is constantly on my mind. There is a trial going on at Mayo Clinic in Rochester Mn and my oncologist said it would be a game changer for the likes of us. Fingers crossed.