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DiscussionA month into my diagnosis with PMR
Polymyalgia Rheumatica (PMR) | Last Active: Nov 14, 2023 | Replies (57)Comment receiving replies
Replies to "I hear you - I am an active 68 year old male - my PMR started..."
If my case was any indication, PMR can last longer than 6 years ... more like 12 years for me. The majority of people are able to taper off prednisone in 1-2 years. There are a significant number of people who take prednisone for a longer period of time.
I actually lost hope that I would ever be able to taper off prednisone. Some people argued that it was all about quality of life and I should continue taking prednisone.
I would encourage people to taper off prednisone as soon as they can. My "long term" treatment didn't improve my quality of life. It was one "prednisone related" medical complication after another after my first couple of years of treatment with prednisone.
I fit into the profile described in the following link.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4844628/
Furthermore, tocilizumab therapy was tried after 12 years of PMR and I was off prednisone a year later. I'm still doing tocilizumab infusions every 4 weeks.
PMR seems to be in remission. Many of my prednisone related complications have resolved or improved given how many other medications I have been able to stop taking.