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How often does PMR progress to GCA?

Polymyalgia Rheumatica (PMR) | Last Active: Mar 29 2:47pm | Replies (115)
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@johnbishop

Hello @julie4868, Welcome to Connect. Thank you for sharing your experience with GCA. You are so right about being your own advocate when it comes to your health.

How are you doing now with your GCA, is it in remission?

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Replies to "Hello @julie4868, Welcome to Connect. Thank you for sharing your experience with GCA. You are so..."
julie4868 | @julie4868 | Nov 13, 2023

Hi John,
Thanks for your work with this forum. It’s a great resource for patients to connect with each other and learn from their experiences.
I am in my 4th year with GCA, on prednisone, and also Actemra since 12/22, and struggling with a relapse. I was thinking that the Actemra infusions would allow me to taper off the prednisone, got to 1.5 mg and had scalp tenderness, temporal pain and have had to go to 30 mg prednisone to relieve symptoms. So it’s pretty disappointing. This is the 3rd relapse I’ve had.
I am a retired medical lab scientist and stay educated on health issues, have read up on PMR/GCA extensively. Blogs like this one and especially Health Unlocked (I think that’s the one, in the UK) have been so helpful.
Thank you.

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