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Immune Thrombocytopenia Purpura (ITP): What helps?

Blood Cancers & Disorders | Last Active: 1 day ago | Replies (174)
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@emmalapp

Has anyone with ITP tried a type of TPO agonist medication? And if so what was your experience like? Was it helpful? Any side effects?

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Replies to "Has anyone with ITP tried a type of TPO agonist medication? And if so what was..."
Colleen Young, Connect Director | @colleenyoung | Nov 17, 2023

I believe members like @vishu1009 @leilab1 @yrag @agfromtheuk @genohappydays can share their experiences with thrombopoietin receptor agonists (TPO-RAs) such as eltrombopag (Promacta), romiplostim (Nplate) and/or avatrombopag (Doptelet).

Emma, have you started taking a TPO?

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agfromtheuk | @agfromtheuk | Nov 19, 2023

Hi Emma,
The name Eltrombobag fills me with dread...My Husband was put on this four years ago, the first weekend he was on it, he had a stroke, but he did have un-diagnosed high blood pressure.
He continued to take it (altered strength) for a few years it was fine and then his levels began to drop so was put onto avatrombog, he finds it very difficult to get any for of stability with this med, he still takes it, but weekly blood test and ranges from 1 to 500 within one week isn't ideal.
His Specialist is going to try the Ref????(forgot the name) infusion in the coming months, so fingers crossed.

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