Looking for experiences with the progression of MDS
Good morning ,
I am looking for shared experiences with the progression of MDS and or other blood cancer. What are signs and or symptoms to be aware of . I am experiencing low WBC count and frequent headaches lately.
Staying proactive and aware of new symptoms.
Thank You ☺️ Brenda
Interested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.
Hi I googled this and the Centers for Excellence in the USA are The Mayo Clinic.
Hi Brenda! New here. Just diagnosed in July, but evidence suggests I have had the disease since 2020. You can go to Mds-foundation.org and order books about MDS, but more importantly use the online tool to find out what risk level the MDS has(Ipss-r or ipss-m). It is an important factor, but understand that about 1/3 of cases will develop Acute Myeloid Leukemia which has a lower survivability rate.