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DiscussionThe decision to be on a liver transplant list or not.
Transplants | Last Active: Jul 10 10:14am | Replies (21)Comment receiving replies
Replies to "@hope25 it sounds like you are doing all good things to stay in reasonable shape and..."
No, I don’t have a definite cause. My ceruloplasmin was low, but the hepatologist thought it was related to nutritional statu, not Wilson’s disease. The other labs were ok. The NASH fibrosure is on the high end of normal and is being continually monitored. He did not recommend a liver biopsy since invasive. I have felt the same since March. After eating more calories, started to feel sleepier compared to normal. This concerned me, but not the physician. I bought LOLA (helps with ammonia-athletes who protein load use this) and feel it made a difference. I have not been diagnosed with encephalopathy. It appeared that my arms and back were losing muscle. My weight is stable. I really have no other symptoms. Sometimes I feel the physician’s are minimizing this and waiting until the bottom falls out. That concerns me. They have the experience of seeing other patient’s so maybe I am overly concerned.