Medication???

Posted by hopefulheart @hopefulheart, Nov 10, 2023

Hello
My dr ( an osteoporosis specialist)suggested Tymlos
My cost $2,300
A month
Not happening
Then she told me to come on and get a brochure ( not a talk) about
Evenity, Reclast, and prolia
Also she suggested I research online

I’m going to my dr for a second opinion
I’m so fed up with the meds that are available

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

@hopeful heart you are not on Medicare yet. I am surprised at the coverage issue with Tymlos. Do they require you to first try Prolia or a bisphosphonate and "fail'? Or do they require a fracture?

I got my Tymlos for free. You can contact Radius. Check the thread on this topic. I believe for those too young for Medicare there are coupons and discounts available. Tymlos has nurses now on their site; the used to have reps who helped with finances. That other thread might provide guidance and I would suggest calling Radius.

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@ans

@hopefulibraian, @hopefulheart, @naturegirl5 ,@reillyg1013 , @gently, @rjd and others.
I LOVE all the info !!!! …. BUT COULD THESE FINANCIAL TIPS PLEASE BE PUT IN THE FINANCIAL THREAD CREATED SPECIFICALLY for that so we can find it easily without having to scour through other places in hopes to find some relevant information concerning this huge DILEMMA!! Thank you soo so very much!!!

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@ans. I will ask about that however I do know that once a Discussion has started and has responses that the entire Discussion cannot be moved. Would you like to start a new discussion in the Financial Thread on this topic? And tag us? That would work.

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@sarahstuart

Call the Tymlos people and see how they can help you. I don't know the details of how it works, but my husband was relieved with the help we got.

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I called them
They offer 7,500
A lifetime

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@windyshores

@hopeful heart you are not on Medicare yet. I am surprised at the coverage issue with Tymlos. Do they require you to first try Prolia or a bisphosphonate and "fail'? Or do they require a fracture?

I got my Tymlos for free. You can contact Radius. Check the thread on this topic. I believe for those too young for Medicare there are coupons and discounts available. Tymlos has nurses now on their site; the used to have reps who helped with finances. That other thread might provide guidance and I would suggest calling Radius.

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I called radius
$7,500 for lifetime offered

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@hopefulheart

I called radius
$7,500 for lifetime offered

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hopefulheart,
thanks. That is so interesting. I wonder if they anticipate that patients might be taking the drug for more than two years.

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@gently

hopefulheart,
thanks. That is so interesting. I wonder if they anticipate that patients might be taking the drug for more than two years.

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Tymlos is 2 years

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In reply to @hopefulheart "Tymlos is 2 years" + (show)
@hopefulheart

Tymlos is 2 years

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hopeful heart, the two year limit was applied because of the (disproven) bone cancer risk. With Tymlos and Forteo we can now take either drug after sequencing with bisphosphonates.

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@ans

@hopefulibraian, @hopefulheart, @naturegirl5 ,@reillyg1013 , @gently, @rjd and others.
I LOVE all the info !!!! …. BUT COULD THESE FINANCIAL TIPS PLEASE BE PUT IN THE FINANCIAL THREAD CREATED SPECIFICALLY for that so we can find it easily without having to scour through other places in hopes to find some relevant information concerning this huge DILEMMA!! Thank you soo so very much!!!

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@ans your thread is truly helpful, and you definitely titled your conversation far better than I did regarding it's content making it easier to find. Thank you so much for that.
I understand what you mean about "having to scour through other places in hopes to find some relevant information." It is indeed a huge dilemma.
As someone who is under 65 without access to Medicare, I'm having that very problem finding financial tips relevant to my situation spread throughout these threads as so much of it is written by and for Medicare recipients. I started the linked thread to separate out programs that are available to those of us who are under 65.
You are right that those tips should also be included in your thread which applies to all assistance for all situations. I'll add a comment there with a link for those specifically looking for assistance available even if you don't have Medicare. Thank you for your efforts in making it easier for all of us to find this useful information.

Here's the link to the under 65's assistance thread so that if you're reading this you don't have to hunt it down: https://connect.mayoclinic.org/discussion/any-leads-on-rx-payment-assistance-for-under-65s/

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@gently

hopeful heart, the two year limit was applied because of the (disproven) bone cancer risk. With Tymlos and Forteo we can now take either drug after sequencing with bisphosphonates.

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Thanks

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For people who are low income, there are programs to assist financially. Your doc should be able to help.

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