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Interstitial pulmonary fibrosis

Lung Health | Last Active: Sep 2 9:03am | Replies (58)
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@maryecox

I have been on Cellcept since early 2021 and have tolerated it well. I was diagnosed with ILD in 2020. My symptoms were never bad and I would say I am asymptomatic now. I am taking 500 mg/day. My PFTs are normal so I am hoping it will be discontinued next year and that my condition is stable when weaned from the drug. I am 79 and female. I have an outstanding pulmonologist.

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Replies to "I have been on Cellcept since early 2021 and have tolerated it well. I was diagnosed..."
ch47 | @ch47 | Nov 12, 2023

So happy to hear that you are still doing so well!!!
Recently Asked gp that originally diagnosed ipf how bad his lungs were, not in that manner, and he danced around it…I suggested that it might not be his place to answer, and he grabbed that in a nice way. Didn’t push it. Didn’t want to freak out my husband.
Our pulmonary doc said she needed a year to see how he does on the Ofev…March-April? Tests then.
Great to hear from you, please keep in touch!!!

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