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Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Neuroendocrine Tumors (NETs) | Last Active: Dec 28, 2023 | Replies (42)
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@mcohan

I am having my lower right lobe removed on Nov. 21
I have 2 typical carcinoids..
Can you tell me what to expect for the surgery.
I will have it done at Emory University hospital in Atlanta.

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Replies to "I am having my lower right lobe removed on Nov. 21 I have 2 typical carcinoids....."
Zebra | @californiazebra | Nov 12, 2023

I met a lady through a NETs organization who told me she had a lung lobe removed due to a 9 cm NETs tumor. She was 70 and is now 80 and has had no additional NETs issues. She just has a CT scan once a year. Also didn’t have any respiratory issues from the surgery and she feels great. I’m very hopeful that those of you with a single tumor or tumors in the same lobe will be one and done with surgery and go on to be NETs free for life. Prayers for you that you’ll heal quickly.

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