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Might have CLL: Does it come on fast?
Blood Cancers & Disorders | Last Active: Jul 9 8:45am | Replies (22)Comment receiving replies
I had normal blood work over the summer of 2022, then I started losing weight and feeling tired in sept and my pcp did blood work and it showed possible CLL. I had an appt with hematology in oct and they did the cyto and fish, that showed CLL. I have had tons of blood work and pet scans over the last year. They did a lymph node biopsy this August . They have not done a bone marrow one, I think because at this point there is no need to be that invasive. Hope that helps.
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In June I had Cyto and Fish both indicate CLL. Also had biopsies - on on lyph node. I have "numerous" swollen lymph nodes, mostly on my neck. I have been losing weight - muscle in hips and legs. Really tired in heat. Otherwise energy seem fairly good. I am waiting on IGHV test which apparently indicates mutated or unmutated cells. I am not sure but I believe the mutate cells result is the better more controllable type. I'm still trying to process and realize I have this and what does it means for the future for me, my wife and children. I mean, "do I have a terminal disease?" This is hard to process.