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Looking for experiences with the progression of MDS

Blood Cancers & Disorders | Last Active: Nov 30, 2024 | Replies (46)
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@momz

Anne-Marie,
Thank You for all the information.
I have an appointment in February 2024. I am looking forward to learning more and getting a better understanding!
I am 49 years old and live in Indiana, US.
I would like to think I have some control over my health, but I’m afraid it’s not possible??
Glad to have someone to talk to! Thanks Brenda 😊

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Replies to "Anne-Marie, Thank You for all the information. I have an appointment in February 2024. I am..."
germaine9 | @germaine9 | Nov 12, 2023

Hi Brenda,
As someone else who posted here said “Be your own advocate.” Since you are only 49 years old, you would be eligible for a transplant as long as you don’t have any serious co-morbidities. The Mayo Clinic in Rochester, Minnesota is the best transplant hospital in the US, and it is not that far from you. I have no idea how much a transplant there would cost, but it would be worth it if it saved your life. But first you have to find out what kind of MDS you have and what your risk level is. The Aplastic Anemia and MDS International Foundation has great information. Their website address is mds-foundation.org.
Anne-Marie

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