Has anyone had the cauterization of the area done?
Would love to know if anyone has found any recent success with solving this problem as I have had it for years. Images I have seen look very similar to what I expel daily. Here is where I am at in trying to solve the daily frustration of needing to expel these crusts...
About 3 months ago I went to see 2 ENTS, one being my regular ENT and one being a new one for a second opinion. The new ENT took a look and did make the assumption that I have a Thornwaldt Cyst. 5 days later I had an appoitnment with my regular ENT and I ensured that I did not attempt to clear the daily crust I have to expel as I wanted him to find it with his camera. I explained what the new ENT had said and he went right to the nasopharynx and found the crust. He was amazed at how hard it was to dislodge and once he took it out I felt amazing (as I usually do after I expel it myself but of course takes a lot of work).
At this point I am waiting to get a CT scan done and I discussed with him the idea of electro cauterization as someone posted an article about that procedure. In the meantime here is what he wanted me to do:
- Take 2 x 600mg NAC supplements daily
- Take 2 x Rhinaris oil daily
- Put a small pea size amount of Lanolin into each nostril before bedtime
- Every other day use pulmicort in a nasal syringe, lay on back with head over the edge of the bed and spray half the pulmicort into each nostril - this is mainly to prevent polyps.
The above really has just been a way to help make expelling these crusts easier and does not solve the core issue. At this point Im thinking I will try the Xxylitol rinse method someone mentioned to see how that goes.
Ill update here when I get my CT result and see my ENT again.
I might have thornwaldt crust as well, but I'm getting 2nd opinion later this month. I did talk to a girl who had it removed, she told me this:
It's something that is almost always looked over or misdiagnosed. I was quite insistent that I had something wrong and the 3rd ENT I went to found the cyst!
I didn't get my tonsils removed, but they did however, remove my adenoids. I too had post nasal drip and ear infections for most of my life. Smoking, dry weather, sleeping with the fan on made it worse, as well. But they performed a quick surgery to drain the cyst, then sewed it in a way that it could drain. My cyst formed in my nasopharynx in a spot that was deformed (apparently it happens in the womb). So they stitched up the hole as well and I've been doing fantastic since.