Hi Brenda,
IPSS-R are the initials for International Prognostic Scoring System - Revised. I know this is confusing but the IPSS-R was just recently revised again to include information about specific gene mutations. It is called the IPSS-M - International Prognostic Scoring System - Molecular. By the way, back when this all started for me thirteen years ago, the risk stratification system was just called the IPSS, and I never actually got an IPSS score myself because there was no scoring system for “presumptive” MDS. MDS is a progressive disease, and knowing your score would give you more information about your likely prognosis and the best treatment plan for you. When do you see your doctor again? I am very interested to hear what the outcome of that conversation will be!!
Anne-Marie