Diagnosed with Uterine Cancer (Leiomyosarcoma)

Posted by cjacobs99 @cjacobs99, Mar 4, 2022

I was diagnosed with Uterine Cancer (Leiomyosarcoma) this month. Two months ago large mass was found in my uterus. Prior to that, there were no signs or symptoms of large mass. I received my Covid vaccine on 12/9/21 on the first day of my cycle. My period went from being very heavy to light spotting that month. This never happens. Ten days later I went into the ER due to severe pelvic and abdominal pain. A CT scan confine a large tumor (tennis ball) growing in my uterus. I have no history of fibroids and a recent Ultrasound confirms that. Less than a month later I developed Covid(delta/omicron unknown) and my recovery time over three weeks. During that time my uterus/tumor doubled in size, as if I was in my last trimester of pregnancy. A full hysterectomy was performed and biopsy confirms uterine cancer (lmsarcoma). I believe the Covid vaccine and infection triggered the cancerous tumor to grow rapidly in a short period of time causing the pain and discomfort to manifest. Curious if anyone else has experience with the impact of Covid and cancer.

Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.

marchelle | @marchelle | Nov 10, 2023

In reply to @joan450 "I wish I knew. Just hang on…" + (show)

They increased my water pill (lasix) to 40mg, and what a difference it made in one day. Legs are better.

joan450 | @joan450 | Nov 10, 2023

In reply to @marchelle "They increased my water pill (lasix) to 40mg, and what a difference it made in one..." + (show)

That’s great! It’s so important to keep the drs informed, yet it’s awkward for me to tell them every little thing I feel even though they tell me to do just that. Well, not every little thing, but you know what I mean.

marchelle | @marchelle | Nov 10, 2023

In reply to @joan450 "That’s great! It’s so important to keep the drs informed, yet it’s awkward for me to..." + (show)

Thank you. I know what you mean, but given what we are going through, it's important to tell them every little thing that is bothering you, so it can be charted, I do.

Colleen Young, Connect Director | @colleenyoung | Nov 14, 2023

Thinking of you today, @joan450.

joan450 | @joan450 | Nov 21, 2023

In reply to @naturegirl5 "@joan450 This is so difficult. Your post that follows this indicates that you will meet with..." + (show)

Well, I've changed my insurance so that I can consult with a Dr. at Sloan Kettering who has experience with (myxoid) leiomyosarcoma, so I've postponed radiation until then. The consultation should be close to December 1st. I was about to begin radiation, but I'd rather consult with her first.

cjacobs99 | @cjacobs99 | Nov 22, 2023

In reply to @joan450 "Wish I’d reread my previous post. I meant to sat - Not about Covid and cancer-..." + (show)

It will be two years next month from when they found the first tumor. Since then, I’ve learned that these tumors can grow rapidly, doubling in size within a month.

I’ve treated three lung tumors all were small, less than 1.5cm by targeted radiation and one cyrobalation. I have a PET scan next month, so hopefully 🙏 all is clean.

I know this disease is a horrible beast that I’ll be fighting for the right of my life. I’m learning to live my life through the cancer and treatments.

cjacobs99 | @cjacobs99 | Nov 22, 2023

In reply to @marchelle "I pray that all goes well for you....let me change that, I know that it will..." + (show)

Thank you for the encouragement. It’s almost been two years, and I’m still fighting this beast but I’m in a stable place now. I believe one day soon I will reach NED (no evidence of disease).

cjacobs99 | @cjacobs99 | Nov 22, 2023

In reply to @joan450 "Well, I've changed my insurance so that I can consult with a Dr. at Sloan Kettering..." + (show)

I’m glad you are able to see a doctor at high volume Sarcoma Center. It is very important and crucial that LMS patients get treatment by a specialist. It makes a Huge difference in care. I’m being treated by Dr. Ganjoo at Stanford.

My subtype is epithelioid LMS. We are in a very rare group. There is a Facebook support group I joined called LMSDR.org that has really helped me out. You should check it out, if you haven’t already. Wealth of information and experience in this group.