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Diagnosed with Uterine Cancer (Leiomyosarcoma)
I was diagnosed with Uterine Cancer (Leiomyosarcoma) this month. Two months ago large mass was found in my uterus. Prior to that, there were no signs or symptoms of large mass. I received my Covid vaccine on 12/9/21 on the first day of my cycle. My period went from being very heavy to light spotting that month. This never happens. Ten days later I went into the ER due to severe pelvic and abdominal pain. A CT scan confine a large tumor (tennis ball) growing in my uterus. I have no history of fibroids and a recent Ultrasound confirms that. Less than a month later I developed Covid(delta/omicron unknown) and my recovery time over three weeks. During that time my uterus/tumor doubled in size, as if I was in my last trimester of pregnancy. A full hysterectomy was performed and biopsy confirms uterine cancer (lmsarcoma). I believe the Covid vaccine and infection triggered the cancerous tumor to grow rapidly in a short period of time causing the pain and discomfort to manifest. Curious if anyone else has experience with the impact of Covid and cancer.
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They increased my water pill (lasix) to 40mg, and what a difference it made in one day. Legs are better.
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1 ReactionThat’s great! It’s so important to keep the drs informed, yet it’s awkward for me to tell them every little thing I feel even though they tell me to do just that. Well, not every little thing, but you know what I mean.
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2 ReactionsThank you. I know what you mean, but given what we are going through, it's important to tell them every little thing that is bothering you, so it can be charted, I do.
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2 ReactionsThinking of you today, @joan450.
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3 ReactionsWell, I've changed my insurance so that I can consult with a Dr. at Sloan Kettering who has experience with (myxoid) leiomyosarcoma, so I've postponed radiation until then. The consultation should be close to December 1st. I was about to begin radiation, but I'd rather consult with her first.
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1 ReactionIt will be two years next month from when they found the first tumor. Since then, I’ve learned that these tumors can grow rapidly, doubling in size within a month.
I’ve treated three lung tumors all were small, less than 1.5cm by targeted radiation and one cyrobalation. I have a PET scan next month, so hopefully 🙏 all is clean.
I know this disease is a horrible beast that I’ll be fighting for the right of my life. I’m learning to live my life through the cancer and treatments.
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2 ReactionsThank you for the encouragement. It’s almost been two years, and I’m still fighting this beast but I’m in a stable place now. I believe one day soon I will reach NED (no evidence of disease).
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1 ReactionI’m glad you are able to see a doctor at high volume Sarcoma Center. It is very important and crucial that LMS patients get treatment by a specialist. It makes a Huge difference in care. I’m being treated by Dr. Ganjoo at Stanford.
My subtype is epithelioid LMS. We are in a very rare group. There is a Facebook support group I joined called LMSDR.org that has really helped me out. You should check it out, if you haven’t already. Wealth of information and experience in this group.
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1 ReactionKeep the faith, and stay positive. 🙏🏾
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1 ReactionThank you. I’ll rejoin facebook and check out the group. I’m interested in more information!!!
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