← Return to Does anyone else have MGUS?

Discussion

Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: 15 hours ago | Replies (854)

Comment receiving replies
@mguspixi25

I’m very sorry to hear this 😔
I agree it would be super helpful to find out the details of diagnosis; I have a colleague who was Dx’d with IgM kappa who has some form of brain vasculitis - she had 3 strokes before they figured out what was going on, and that the vascular issues were related to her unique form of MGUS (there are other sub-categories that are specific to her, however those details are not known to me).
I am in Au, otherwise I would try to help you in some way.
Having said that, I hope there is a mechanism where you can speak with a haematologist directly, who is a specialist in myeloma and MGUS, who will at the least give you all the defining test results, but will go further to inform you of the likely associated symptomatology/things to watch out for according to each type.
Wishing you the very best.

Jump to this post


Replies to "I’m very sorry to hear this 😔 I agree it would be super helpful to find..."

Thank you for this. Take care.