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Chronic Pain members - Welcome, please introduce yourself
Chronic Pain | Last Active: 3 days ago | Replies (6907)Comment receiving replies
Hi . I'm Judy -70 years old and diagnosed last November with an idiopathic thoracic spinal syrinx. I have suffered baffling pain symptoms most of my life and finally an MRI confirmed the condition. I have been grappling with chronic stabbing nerve pain and my neurologist /pain management doctor prescribed Gabapentin which I tried for 6 months with many side effects and little relief. I am now on 200 mg of Lyrica and hoping to get some sustained pain relief. I also get acupuncture, massage weekly and have gone to PT for 2 months! I would appreciate any input from members who may be familiar with this rare condition. Thanks
Replies to "Hi . I'm Judy -70 years old and diagnosed last November with an idiopathic thoracic spinal..."
For budget issues.....try learning to use a vape refill kit. Cuts the cost considerably. For me, a vape cartridge usually lasts a week and they are about $25 so that can be $3 per day. I have found a very pure hybrid called Cobra that even lasts longer than a week. On top of that I drop a Butterscotch Jolly Stoner in my coffee in the morning... $2 and discounts are available for frequent buyers and volume purchases. Add another $1 or so for a midday soother and we are at $6 per day. Would that help you?
Hi, Chris. All that you say is a foreign language. I've never smoked, and the only Marijuana I've had, I put in cannabutter and made brownies and cookies.
Do I find these things at the local dispensary?
Jim
Yes Jim, everything I mentioned is at one of two dispensaries I use. The staff is very helpful. My physicians know of my use and are supportive.
And I o not smoke anything. I use the purist oil in a pen that creates a vapor.
In Oregon, I have to pay $200 annually for an appointment with a doctor who writes a scrip, another $200 annual fee to the state, and the cost of the product, with a ridiculously high tax. I haven't decided it's worth it. My pcp would stop prescribing my morphine - if I still needed it - and Clonazepam and Percocet. He might even drop me as a patient if I started using mm.
For now, I'm kind of on hold, waiting to see how much benefit I'll get from the spinal cord stimulator, and for how long. I don't want to burn any bridges.
Jim
Hello @jujubbb, you may also be interested in checking out the following conversation in the Brain & Nervous System group on syringomyelia, https://connect.mayoclinic.org/search/?search=syringomyelia.
@jujubbb, here is a discussion centered completely around medical marijuana and chronic pain, https://connect.mayoclinic.org/discussion/chronic-pain-2bd75e/.
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Good to hear that you have worked out a program using both conventional medication and Medical Marijuana. My program right now is exactly the same as yours for the same reasons. I appreciate the Medical Marijuana more and more especially because of the easy, non addictive way it soothes the pain and makes you feel like a living, breathing human being once again without any side effects.