← Return to Looking for experiences with the progression of MDS

Discussion

Looking for experiences with the progression of MDS

Blood Cancers & Disorders | Last Active: 18 hours ago | Replies (42)
Comment receiving replies
@jps01

Brenda, I was dignosed a year ago. But it is probable that the MDS was present much earlier. But I had not had a normal blood test since 2017. A new doctor ordered one last Fall, and bingo, I was off to a hematologist, and the MDS diasgnostic.
Anne-Marie, may I ask you where are the MDS Centres of Excellence in Canada and in the US?

merci jean-pierre

Jump to this post

Replies to "Brenda, I was dignosed a year ago. But it is probable that the MDS was present..."
momz | @momz | Nov 9, 2023

Jean-Pierre,
Could you explain what your test showed?
How are you feeling now on a daily basis?
Have you had any major symptoms that disrupted your activities?
Brenda 😊

VIEW AND REPLY
germaine9 | @germaine9 | Nov 9, 2023

Hi Jean Pierre,
There are so many. If you Google mds-foundation.org, you will get a map showing all the Centres of Excellence in the US. For Canada you can get the MDS Index at mds-can.ca. I live in Canada, and I hear that the Sunnybrook Hospital in Toronto is very highly regarded. Hope this helps.
Anne-Marie

VIEW AND REPLY